I’m a newbie here - working onsite in the medical field in NYC. I have had serious issues with uncontrollable arousal in April, although looking back my symptoms slowly started in 2018. My GYN referred me to pelvic floor PT, which I started in June, and had somewhat started helping until last week, when I developed uncontrollable nerve spasms in the vulva, thighs, lower abdomen and piriformis muscle.
I have an appointment with a pelvic pain specialist in August, I am wondering if it would be worth doing a telephone visit beforehand as the spasms really interfere with my ability to sleep. Naproxen and tizanidine take the edge off slightly, as does using a heating pad (during a hot and humid July…) and at this point I’m open to trying other medications. I use a theraseat at work which helps take the edge off but a toilet seat or standing are still better. My physical therapist said I have internal muscular tightness and recommended dilators; is this ok for PN?
I’m also a little afraid of what will happen if I’m not better by the fall - I am currently wearing loose dresses and shorts as tight pants and underwear are beyond uncomfortable. Harem leggings and skirts?
I previously suffered from occipital neuralgia and experienced long term relief from a single steroid injection. Is there ANY chance that happens?
What do we wear?
Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Jump to
- GENERAL
- ↳ ANNOUNCEMENTS & COMMUNITY
- ↳ NEWS & UPDATES
- ↳ WELCOME CENTER
- ↳ Local Support Groups
- ↳ DEUTSCHES FORUM
- ↳ FORUM EN FRANCAIS
- ↳ SPANISH FORUM
- ↳ CAUSES & EFFECTS OF PUDENDAL NEURALGIA
- ↳ ASSOCIATED DISORDERS
- ↳ SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
- ↳ MEDICAL ADVANCES & EDUCATION
- ↳ LIBRARY - PUBLICATIONS & MEDICAL JOURNALS
- ↳ INSURANCE & DISABILITY ISSUES
- ↳ ARCHIVED & CLOSED TOPICS
- DIAGNOSIS & TREATMENT
- ↳ NEUROLOGICAL TESTING
- ↳ NERVE BLOCKS
- ↳ PAIN MANAGEMENT & MEDICATIONS
- ↳ PHYSIOTHERAPY
- ↳ PHYSICAL THERAPY TECHNIQUES
- ↳ BOTOX
- ↳ NEUROSTIMULATION
- ↳ SURGERY
- ↳ OTHER THERAPIES
- ↳ MRI/MRN
- WORLDWIDE
- ↳ AUSTRALIA & NEW ZEALAND
- ↳ BELGIUM
- ↳ CANADA
- ↳ Dr Gordon - Toronto
- ↳ FRANCE
- ↳ Nantes
- ↳ Aix En Provence
- ↳ INDIA
- ↳ SPAIN
- ↳ TURKEY
- ↳ Dr. Tibet Erdogru
- ↳ UK & IRELAND
- ↳ USA
- ↳ Dr Hibner - Arizona
- ↳ Dr Conway - Surgeon - New Hampshire
- ↳ Dr Marvel -- Maryland
- ↳ Dr Filler -- Southern California
- ↳ Dr. Barry Jarnagin
- ↳ Dr. Jason Cohen -- New Jersey
- ↳ Dr. Andrew Elkwood
- ↳ Dr. Sheldon Jordan -- Southern California
- ↳ Dr. Jason Attaman, DO
- ↳ Dr. Stephen Mann -- California
- ↳ Dr. Hollis Potter -- New York
- ↳ Dr. Seyed Shobeiri -- Oklahoma
- ↳ Dr. Jerome Weiss -- California
- ↳ Dr. Fred Howard -- Rochester, NY
- ↳ Retired or No Longer Treat Pudendal Neuralgia
- ↳ Dr. Eduardo Quesada -- New Hampshire
- ↳ Dr Renney, Dr. Ansell - Houston
- ↳ Dr. Stanley Antolak -- Minnesota
- ↳ Dr Redmond -- South Carolina
- ↳ SOCIAL DISCUSSIONS & FUN
- ↳ SPIRITUAL AREA