PGAD - persistent genital arousal disorder

[Summer]

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[Summer]

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[stephanies]

I have Tarlov Cysts too. I think they are under-recognized by many doctors as a potential cause of PGAD and PN.

Stephanies

[Violet M]

( He has the cyst or disc protrusion operated on and removed
( Sometimes he injects a product into the affected nerve). !


To find the cause, you need to do a Pudendal/Perineal electrophysiology EMG !

He has the cyst or disc protrusion operated on and removed. Sometimes he injects a product into the affected nerve.

Several times in your post you referred to "he." I'm assuming you are referring to a doctor there? I would appreciate an explanation as to who you are referrring to.

Thanks,
Violet

[Summer]

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[Summer]

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[stephanies]

Hi Summer,

I have several very small Tarlov Cysts at S2, S3, and S4. The largest is at S2 on my left and is about 6-7mm and the others are 4mm or less. I have had PGAD only occasionally and it was very mild compared to some other people's experiences with it. Pain has always been my primary issue. I had an ovary removed a few years ago and went into surgically induced menopause which all but eliminated the PGAD for me.

I am not French, I live in the U.S.

Stephanies

[Violet M]

Hello Violet

I'm sorry for the translation, but it's not easy to give the right terms because of deepl or Google translation, French = English
Quand je parle de il, oui c'est pour dire les médecins/spécialistes donc au pluriel = plusieurs ou beaucoup de médecins.

French spelling:

Il = singular = 1 person
Ils = plural = several people

Yes I'm talking about several doctors

I hope you've understood ?

Yes, thanks for the explanation. I guess I was asking because if you are referring to some doctors, I was wondering which doctors do the treatments you described. Are they doctors already on our list at the following link, or other doctors? https://www.pudendalhope.info/list-of-doctors-2/
I am always looking for new doctors that might need to be added to the list.

Violet

[Summer]

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[Violet M]

HI Summer,

Thanks for posting all the names of those French doctors. I had not heard of some of them before. If any of them would like to be listed on our website as a doctor who treats or can diagnose pudendal neuralgia, please ask them to contact me at admin@pudendalhope.org and request to be listed.

I had pudendal nerve decompression surgery from Eric Bautrant about 19 years ago and I am essentially cured of PGAD. So, I believe pudendal nerve entrapment was the cause in my case. Dr. Bautrant is wonderful, by the way. He is very caring, kind, and an excellent surgeon in my opinion. Prof. Robert actually retired so I need to remove his name from the list. A doctor with the last name Ploteau took his place. You can read what other people have said about him on this forum if you put his name into the search bar. You might already know about him.

Violet