Is this PGAD HELP needed

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Violet M
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Re: Is this PGAD HELP needed

Post by Violet M »

Lovepeps wrote: Fri Oct 27, 2023 10:28 am Hello Violet,

Wich SSRI antidepressant helped you significantly with the symptoms?

My doc gave me pregabaline. I am having doubts to take it.

And how is it possible that when i lay down the arousal is calmer and walking makes it worse?
Lovepeps,

The name of the SSRI I took was Lexapro (escitalopram is the generic name). Some people have improved symptoms with pregabalin or a combination of an SSRI or SNRI such as duloxetine. If you decide to try these medications, it's important to know that you can't just suddenly quit taking them. You would have to wean off of them slowly to prevent some potential side effects from discontinuing the drugs.

If your symptoms are positional and related to certain activities, it could potentially be a structural problem where the nerve is getting more pressure on it in certain positions or being rubbed on by a ligament or something when you are active.

It sounds like you are already seeing a doctor. Hopefully they have ordered tests for you such as MRI. Are you able to see one of the pudendal neuralgia specialists?

Summer, no worries, I do not lift heavy weights anymore! :)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Summer
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Re: Is this PGAD HELP needed

Post by Summer »

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Last edited by Summer on Sun Jan 21, 2024 8:46 pm, edited 1 time in total.
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Violet M
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Re: Is this PGAD HELP needed

Post by Violet M »

Summer,

I've not heard of a hormonal imbalance from taking SSRI's causing PGAD. Do you know of any peer reviewed literature on that topic? I found one article in pubmed but it doesn't seem very conclusive and it didn't mention PGAD. I know that there is an association between SSRI's and some people developing PGAD but I didn't know there was any conclusive evidence on the mechanism for why this happens. I think it's pretty rare though, because PGAD is considered to be rare. But to be safe, I weaned off of the SSRI very slowly (by 1/8 tablet per week) when I discontinued it. There is always a risk/benefit analysis for any drug we take.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Summer
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Joined: Fri Oct 20, 2023 3:28 pm

Re: Is this PGAD HELP needed

Post by Summer »

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Last edited by Summer on Sun Jan 21, 2024 8:47 pm, edited 4 times in total.
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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
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Re: Is this PGAD HELP needed

Post by Violet M »

Thanks, Summer.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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