Symptoms and surgery
Symptoms and surgery
It all started in late 2020. My first symptoms was weak ejaculation that I thought nothing of . Then I was having sex in February of 2021 and I noticed I would get a little softer easier during sex . Then I had urinary urgency (I think) then in May 2021 I lost ALL my sexual function . I couldn’t get aroused from porn or anything had to do constant stimulation to get an erection. If I didn’t keep constant stimulation I would lose it immediately. Then in November 2021 I got really bad constipation and burning pain after bowel movements . Got a colonoscopy found hemmorhoids. Went like another year like this with completely broken penis . I discovered Dr Bollen’s and he said we should treat me as a pudenal nerve patient. I went to Belgium and I got his surgery . He when he operated on me that I had “the tightest compression “ he had ever seen and that when he cut my ligament the nerve “popped out “ it’s been 14 months since my surgery and my penis and erectile function is still non existent. I am more constipated than before but I don’t have any of the pain after bowel movements . Dr Bollen’s has told me that it takes MANY patients 18 months to see any results from surgery . Should I trust his findings and his ideas on my situation. I was on different psych meds when all these symptoms started and I’m terrified that it’s from those . I’m so stressed about this that I am planning to end my life if this doesn’t get better it has destroyed my life . Anyone have any input about my surgery and timeline . I had really no pain ever just all this complete loss of sexual ability . No arousal . Feels like no connection between my brain and penis . Getting more and more hopeless everyday.I also have insomnia because I am so stressed about This. I just can’t believe that bollens actually knows how to identify what “entrapment “ looks like and maybe some people are just born this way . I am convinced it’s from my medications .
Re: Symptoms and surgery
Hi Marone,
There are medications that can affect sexual function, but I can't say for sure whether your problems are due to medications or from a damaged nerve from the tight compression -- or maybe a combination of those factors. What medications are you taking that you feel could be the problem? You could check with the doctor who prescribed the medications or with the pharmacist to see if the medications you are on could cause the symptoms you are experiencing.
I believe Dr. Bollens is correct that it can take 18 months for the nerve to heal because it took that long for me, and there are people who say it took even longer than that for them. So, I wouldn't give up hope yet.
Violet
There are medications that can affect sexual function, but I can't say for sure whether your problems are due to medications or from a damaged nerve from the tight compression -- or maybe a combination of those factors. What medications are you taking that you feel could be the problem? You could check with the doctor who prescribed the medications or with the pharmacist to see if the medications you are on could cause the symptoms you are experiencing.
I believe Dr. Bollens is correct that it can take 18 months for the nerve to heal because it took that long for me, and there are people who say it took even longer than that for them. So, I wouldn't give up hope yet.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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stephanies
- Posts: 683
- Joined: Mon Oct 25, 2010 3:07 am
Re: Symptoms and surgery
Hi Marone,
Are you still taking the psych meds? I think a consultation with your doctor and/or pharmacist is a great idea as some of the effects can be longer term. I am sorry you are dealing with this. Please post an update on your progress or what you find out from your medical providers.
Stephanies
Are you still taking the psych meds? I think a consultation with your doctor and/or pharmacist is a great idea as some of the effects can be longer term. I am sorry you are dealing with this. Please post an update on your progress or what you find out from your medical providers.
Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
Re: Symptoms and surgery
Hi Marone,
I'm so sorry to hear about what you've been through, but as Violet said, it does take a very long time to heal after surgery. I think I continued to very gradually heal for at least 18 months but it was probably closer to two years. You wondered if the surgeon could really identify entrapment. I, of course, don't know. But, I did sense from talking to my surgeon that the nerves and ligaments do look different across patients. The description he gave me of my nerve was a little bit like yours---he said after the nerve was detached from the ligament, it went from a flattened to a rounded shape like a lawn hose (which is how it is supposed to look, apparently). I'm not sure if that helps you any, but it does sound like what they find varies.
Violet's and Stephanies's suggestions to consult your doctor and/or pharmacist about your meds makes a lot of sense.
Take care,
April
I'm so sorry to hear about what you've been through, but as Violet said, it does take a very long time to heal after surgery. I think I continued to very gradually heal for at least 18 months but it was probably closer to two years. You wondered if the surgeon could really identify entrapment. I, of course, don't know. But, I did sense from talking to my surgeon that the nerves and ligaments do look different across patients. The description he gave me of my nerve was a little bit like yours---he said after the nerve was detached from the ligament, it went from a flattened to a rounded shape like a lawn hose (which is how it is supposed to look, apparently). I'm not sure if that helps you any, but it does sound like what they find varies.
Violet's and Stephanies's suggestions to consult your doctor and/or pharmacist about your meds makes a lot of sense.
Take care,
April
Re: Symptoms and surgery
Hi April
With surgery did the surgeon find your nerve in scar tissue?
I think I read a comment from you on this forum how you mentioned there was scarring on the nerve on the left side?
Do you think there's a possibility that you may also have a right side compression to
I had a transglutal surgery last month(USA) and my surgeon noted that both sides were ligament compressed which had been freed up. He states that most people he operates on have a anatomical issue with there ligaments setting them up for compression. I'm in my 30s, has been a difficult road. I would message you but my messages got straight to outbox for some reason.
Tom
With surgery did the surgeon find your nerve in scar tissue?
I think I read a comment from you on this forum how you mentioned there was scarring on the nerve on the left side?
Do you think there's a possibility that you may also have a right side compression to
I had a transglutal surgery last month(USA) and my surgeon noted that both sides were ligament compressed which had been freed up. He states that most people he operates on have a anatomical issue with there ligaments setting them up for compression. I'm in my 30s, has been a difficult road. I would message you but my messages got straight to outbox for some reason.
Tom
Re: Symptoms and surgery
Tom, just letting you know that when you private message someone, the message stays in the outbox until the person opens the message. After they open it, it goes into the sent box.
Violet
Violet
Re: Symptoms and surgery
Hi Tom,
The surgeon did not mention scar tissue. I posted part of surgical report in another entry within the past couple of months, so you could search for my recent entries and find that.
I do not think I have the right side compressed too. I have a very tender area on the left side near the base of my left labia, and I've never had that on the right. I do get broader diffuse pain, but I think that is referred pain. It feels like the source is on the left.
Yes, I have heard that unique anatomical features may set someone up for this compression. Hibner thought my small pelvis might have meant there was less room for the ligaments, making me vulnerable to compression. I can also sit without pain, and he and his (former) pt noted that pattern in patients with my build and they thought it might be because bending opened up space in the pelvis.
Who did your surgery? How is the recovery going?
Take care,
April
The surgeon did not mention scar tissue. I posted part of surgical report in another entry within the past couple of months, so you could search for my recent entries and find that.
I do not think I have the right side compressed too. I have a very tender area on the left side near the base of my left labia, and I've never had that on the right. I do get broader diffuse pain, but I think that is referred pain. It feels like the source is on the left.
Yes, I have heard that unique anatomical features may set someone up for this compression. Hibner thought my small pelvis might have meant there was less room for the ligaments, making me vulnerable to compression. I can also sit without pain, and he and his (former) pt noted that pattern in patients with my build and they thought it might be because bending opened up space in the pelvis.
Who did your surgery? How is the recovery going?
Take care,
April
Re: Symptoms and surgery
Hi, I had very similar symptoms as the author. I am 5 months after surgery with Dr. Bollens. In addition to the nerve, I had problems with blood vessels, which were solved by surgery. The drugs caused me a lot of problems with my sexuality. I gave up on them a long time ago.
It seems to me that there is a strong connection with the condition of the nerve itself. For about 3 months after the surgery I had no feeling in my penis. During this time I had good libido and strong erections. I felt orgasms and it didn't take as long to achieve them as before the surgery. After almost complete return of feeling in the penis, it is still a bit painful, I lost my libido and I have problems with achieving an erection even on tadalafil. I hope it will pass because it's only been 5 months. If not, I will do a nerve block and describe on the forum what effect it will have on my libido and erection.
I'm sorry that only time is your hope. Discontinuing psychotropic medications without medical supervision may result in deepening suicidal thoughts - if they were prescribed to alleviate the symptoms of depression. If you decide to stop taking them, please make sure you have adequate support for this time. Regards
It seems to me that there is a strong connection with the condition of the nerve itself. For about 3 months after the surgery I had no feeling in my penis. During this time I had good libido and strong erections. I felt orgasms and it didn't take as long to achieve them as before the surgery. After almost complete return of feeling in the penis, it is still a bit painful, I lost my libido and I have problems with achieving an erection even on tadalafil. I hope it will pass because it's only been 5 months. If not, I will do a nerve block and describe on the forum what effect it will have on my libido and erection.
I'm sorry that only time is your hope. Discontinuing psychotropic medications without medical supervision may result in deepening suicidal thoughts - if they were prescribed to alleviate the symptoms of depression. If you decide to stop taking them, please make sure you have adequate support for this time. Regards
Re: Symptoms and surgery
I am much much worse man...i am 39 i did not had sex with my wife in 1 year and half....i have the non stop desire to urinate and pain in urethra.I also had Pgad that is horrible....i would gladly give my erection for this symptoms to stop.I understand you are desperate but it could be much , much worse my dear friend.I know your problem seems the biggest but trust me i would take your symptoms in 1 sec if mine would go away.I also take artifical hormons after other surgery at head and even if this days i am desperate i still hope.I know is hard but keep hope pleaseMarone87 wrote: ↑Wed Jan 24, 2024 9:19 am It all started in late 2020. My first symptoms was weak ejaculation that I thought nothing of . Then I was having sex in February of 2021 and I noticed I would get a little softer easier during sex . Then I had urinary urgency (I think) then in May 2021 I lost ALL my sexual function . I couldn’t get aroused from porn or anything had to do constant stimulation to get an erection. If I didn’t keep constant stimulation I would lose it immediately. Then in November 2021 I got really bad constipation and burning pain after bowel movements . Got a colonoscopy found hemmorhoids. Went like another year like this with completely broken penis . I discovered Dr Bollen’s and he said we should treat me as a pudenal nerve patient. I went to Belgium and I got his surgery . He when he operated on me that I had “the tightest compression “ he had ever seen and that when he cut my ligament the nerve “popped out “ it’s been 14 months since my surgery and my penis and erectile function is still non existent. I am more constipated than before but I don’t have any of the pain after bowel movements . Dr Bollen’s has told me that it takes MANY patients 18 months to see any results from surgery . Should I trust his findings and his ideas on my situation. I was on different psych meds when all these symptoms started and I’m terrified that it’s from those . I’m so stressed about this that I am planning to end my life if this doesn’t get better it has destroyed my life . Anyone have any input about my surgery and timeline . I had really no pain ever just all this complete loss of sexual ability . No arousal . Feels like no connection between my brain and penis . Getting more and more hopeless everyday.I also have insomnia because I am so stressed about This. I just can’t believe that bollens actually knows how to identify what “entrapment “ looks like and maybe some people are just born this way . I am convinced it’s from my medications .