update on my condition

[capricorn91]

Hello to forum members,

It has been a while since i last posted, there hasn't been any major changes in my condition, and so there wasn't really anything to update. I have also been dealing with severe exhaustion for the past several months.

However, i wanted to share an update on my pudendal neuralgia, unfortunately i am still experiencing severe ongoing pudendal nerve pain and bladder symptoms, the good news is that i have finally seen a pain specialist and i am going to undergo a nerve block procedure for the first time.

I am hoping that this procedure will be able to provide an official diagnosis of pudendal neuralgia, i personally believe that i have pudendal nerve entrapment which is causing my bladder symptoms, unfortunately most medication has not worked for me.

Thank you for taking the time to read this, and i will try to give an update on my condition after the procedure.

....

[matthewroots77]

Hi
What are your current symptoms

Thanks Matt

[Violet M]

However, i wanted to share an update on my pudendal neuralgia, unfortunately i am still experiencing severe ongoing pudendal nerve pain and bladder symptoms, the good news is that i have finally seen a pain specialist and i am going to undergo a nerve block procedure for the first time.

Hi Capricorn,

Wishing you the best with the nerve block. Are they using steroids or just an anesthetic?

Violet

[April]

Hi Capricorn,

Thanks for the update. I'm so glad you'll be getting more diagnostic information. It can be so relieving to at least get to a more official diagnosis.

Take care,
April

[capricorn91]

Hi
What are your current symptoms

Thanks Matt

Hello,
it is very difficult to describe, but i have constant pain in the pelvic area but not the entire pelvic area, i can tell that it is nerve pain, the pain is like a constant aching pain but i also have bladder pain as well, i had the bladder pain for 7 years before developing the pudendal pain so this is why i am able to tell the difference between the two.

My pudendal neuralgia started after i abruptly stopped taking amitriptyline. However, I also had symptoms of PN ten years prior caused by taking antibiotics. I now believe that my bladder pain and symptoms are a result of the pudendal nerve entrapment, and maybe it always was. My bladder feels extremely full constantly even when it is empty, the pudendal pain is very severe and constant.

My pain is not on either side of my body, but i feel as if my pudendal pain is in the terminal branch of the pudendal nerve or the dorsal part of the nerve, although the pain is also higher along the nerve as well like in the pelvic area, but more internally than muscle pain.

...

[capricorn91]

However, i wanted to share an update on my pudendal neuralgia, unfortunately i am still experiencing severe ongoing pudendal nerve pain and bladder symptoms, the good news is that i have finally seen a pain specialist and i am going to undergo a nerve block procedure for the first time.

Hi Capricorn,

Wishing you the best with the nerve block. Are they using steroids or just an anesthetic?

Violet

Hi Violet,

Thank you! I am pretty sure it will be the anaesthetic because apparently the anaesthetic is used for diagnosing, whilst the steroids are used to reduce inflammation in the long term, but i am not one hundred per cent sure, i will try to post again when i can get confirmation of the type of nerve block.

...

[capricorn91]

Hi Capricorn,

Thanks for the update. I'm so glad you'll be getting more diagnostic information. It can be so relieving to at least get to a more official diagnosis.

Take care,
April

Hi April,

Yes, it will be a relief to get an official diagnosis, although the nerve block cannot diagnose entrapment unfortunately, but getting a diagnosis would hopefully lead to further tests that can confirm the entrapment. Thanks for your reply!

...

[Violet M]

Hi Violet,

Thank you! I am pretty sure it will be the anaesthetic because apparently the anaesthetic is used for diagnosing, whilst the steroids are used to reduce inflammation in the long term, but i am not one hundred per cent sure, i will try to post again when i can get confirmation of the type of nerve block.

...

Recent guidelines by some major medical organizations are saying that there is no evidence for using steroids in pudendal nerve blocks. So, you may want to ask your doctor about that.
viewtopic.php?t=11593

Violet