April, Violet thank you for a reply !!
My piriformis muscle was in spasm after the trigger point injection and the PN back in 2023. After that nerve block, I felt worse than before the injection. I would say, that the nerve block wasn’t helpful at all. Just brought more problems and stress. My muscles were numb almost a year.
After I refuse to do anything like injecting my pelvic floor because I am very scared of experiencing pain again. Sitting is my big problem. Sometimes my bladder hurts but much better than it was before. Sometimes I don’t feel my bladder at all. When I lay down my pain goes down and if I am not have anxiety than I could sleep all night.
However, I did physical therapy with dry needling, which gave me some relief from muscle spasms.
I told my doctor about it, and she said let's try injecting the piriformis muscle to help relax it, using deep dry needling with lidocaine. She said it was safe and that she wouldn’t be close to the nerves. She performed the procedure with ultrasound, and I felt a 3/10 pain level two days after and jumped up to 10/10 for almost a week. Now I am 6/10
Now I am still in a flare, but I don’t have those strong muscle spasms. However, the burning sensation is still there. Mu buttocks don’t hurt anymore, but V area, urethra still in burning condition and the superficial transverse perineum muscle in spasm and does not go away.
I started to speak with psychiatrists who work with people who have chronic pain, depression, and anxiety.
Because all my tests came back negative and nothing shows that there is a problem, he suggested learning about nociplastic pain and starting to work on how to retrain my brain to react to pain.
My pain management doctor recommended avoiding all activities for six weeks. I use heat and cold therapy, and I take Lyrica and Lexapro.
To be honest, with Lexapro, I have experienced some relief after many years of anxiety and pain.
I understand that maybe I won’t be pain-free, but I would like to manage my pain and not feel down every time I experience a flare up .
Maybe you know how ppl live with nociplastic pain, and any recommendations what to do as a patient?
I guess my tissue is so sensitive, my brain lives in fear of pain that I can not fully function daily.
Thank you to being here for us who truly try to help yourself .
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PS. My story of pelvic floor pain started in 2013 after many treatments for UTIs. Some tests showed bacteria, while some of them came back absolutely clear. After many tests, I started taking Amitriptyline, and my symptoms went away after 6 months. Sexual and social live was absolutely amazing!
In 2018, after heavy weightlifting exercises and very emotional conversations with my boyfriend, I got all my symptoms back. Since that time, I have had one remission for a month, but my urologist performed a trigger point injection with a PN block (2023) because I had a very painful flare up after intercourse for weeks. She said it would help to relax muscles and calm down the nerve. and it made my life absolutely miserable. Sometimes, I want to give up and do nothing about it and stay home forever.
