Hi friends,
I'm struggling with a range of emotions right now. For one, my nanny, who is 20 wks pregnant and started working for me when I had my surgery and gets to bring her 15 month old with her to my house, wrote me a long email stating she doesn't like the way my daughter has been behaving. I can't get into details, but basically it made me feel like a worthless parent. I didn't want to put Athena in full time daycare because I thought being around her some would be instrumental to my healing. However, now there seems to be the battle of the two "mother hens" going on even though I'm not battling. My daughter is just shy of 2 1/2. Every day of her life, my body has been wrought with pain. And now I am facing the real possibility of having my other side done, too.
I'm so overwhelmed. I feel like Athena will be adversely affected by my illness in so many ways. It's not right. Plus, I don't want my kid growing up bratty or thinking she can get away with everything just because Mommy is sick and can't restrain her when she has tantrums or keep getting up off the couch when I'm icing my nerves or heating (70% of day).
I'm just at a whole loss of words, and what to do or say.
I feel like God just keeps piling it on. I am trying to cast my burdens on him and give him my yoke, but I am just so... So done with PNE.
I need prayer
I need prayer
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
Re: I need prayer
We love you. This is soooooooo tough. I wish I could make it all go away too. I think you have a good plan having A with you because she needs you. When you hurt it is so hard to parent because it takes energy you just don't have. I wish I could give you a big hug... praying for you.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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- Posts: 1134
- Joined: Sat Sep 18, 2010 12:41 am
- Location: North Las Vegas, Nevada
Re: I need prayer
Prayers coming your way...
And AM, many 2 year old girls are strong willed and full of drama, mine certainly was! The nanny is filled with pregnany hormones and trying to protect her 15 month old...fact is, if she had her OWN 2 year old girl she wouldn't be too happy with the 2 year old behavior. Really you are better off if you can find help in the form of a 17 to 25 year old, single with no kids, nanny. I've always used sitters in that demographic and they have the patience to be a playmate to the child. I think you would see a lot of the behaviors disappear if your daughter got that kind of focused attention instead of a demand that she share with a 15 month old.
I'm not sure if it is realistic for you to find someone else, but if so I recommend it.
Parental guilt is one of those universal things for good parents who care about their kids...all of us find some reason to blame ourselves for "ruining" children that are not even really ruined, just acting like kids.
I grew up around mega doses of drugs and porn and violence, and my parents think they did a great job. I noticed this phenomenon when foster parenting too in dealing with bio-parents: the basic rule is, if you are perfectly satisfied with your parenting, it's probably because you are a dreadful parent with no conscience; and if you are constantly second-guessing yourself and feeling like you are not doing a good enough job, you a probably a MUCH better parent than you think.
now saying some prayers for you AM!
And AM, many 2 year old girls are strong willed and full of drama, mine certainly was! The nanny is filled with pregnany hormones and trying to protect her 15 month old...fact is, if she had her OWN 2 year old girl she wouldn't be too happy with the 2 year old behavior. Really you are better off if you can find help in the form of a 17 to 25 year old, single with no kids, nanny. I've always used sitters in that demographic and they have the patience to be a playmate to the child. I think you would see a lot of the behaviors disappear if your daughter got that kind of focused attention instead of a demand that she share with a 15 month old.
I'm not sure if it is realistic for you to find someone else, but if so I recommend it.
Parental guilt is one of those universal things for good parents who care about their kids...all of us find some reason to blame ourselves for "ruining" children that are not even really ruined, just acting like kids.
I grew up around mega doses of drugs and porn and violence, and my parents think they did a great job. I noticed this phenomenon when foster parenting too in dealing with bio-parents: the basic rule is, if you are perfectly satisfied with your parenting, it's probably because you are a dreadful parent with no conscience; and if you are constantly second-guessing yourself and feeling like you are not doing a good enough job, you a probably a MUCH better parent than you think.
now saying some prayers for you AM!
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Re: I need prayer
Hang in there, AM. This too shall pass. There's a reason for the phrase "terrible twos". Kids know when they are loved. In the long run,that's what matters.
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Re: I need prayer
Hello, Sweet AM,
You are having such a hard time! I can't imagine how difficult is to have this condition, trying to recover and care for a toddler. I personally KNOW what a fantastic Mom you are.
For what it's worth, I think it's very generous of you to allow your nanny to bring her child with her to work. Yes - you're paying her to do a job. Maybe it's too difficult for her to handle two small children? I understand that you feel inadequate as a full functioning parent. I wish you didn't, but I do understand! I think most us feel inadequate as full functioning anything is concerned - without even adding a 2 year old into the equation. But I agree with HM and Don: They don't call 'em the "terrible two's" for no reason!
Very difficult time in the best of circumstances! I also agree with HM that maybe it may be best to try to get someone else, perhaps on a recommendation, that may be better suited to deal with the kinds of issues and provide the type of care your daughter needs.
I wish I were there to give you a warm, gentle hug and reassure you that everything will be alright. Please know my thoughts are with you.
With love and hugs,
Karyn
You are having such a hard time! I can't imagine how difficult is to have this condition, trying to recover and care for a toddler. I personally KNOW what a fantastic Mom you are.


I wish I were there to give you a warm, gentle hug and reassure you that everything will be alright. Please know my thoughts are with you.
With love and hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: I need prayer
Try daycare. Just try it. You can always stop it if she's doing poorly. She might just be at a point where the extra stimulation and guaranteed exercise on an indoor playground are exactly what she needs. I'm not sure it's fair to her to use her at home as "an instrument in your healing". Just as there are a lot of stresses on you, there are stresses on her. She might really benefit from something as simple as getting more tired out every day, and daycare is really great at providing structured days that help kids of that age to control their impulses.
I think the nanny is probably finding it hard to keep up with two toddlers with a growing middle, doesn't understand your pain situation, may be hormonal, and is probably thinking if she can't control your child it's going to undermine her authority with her own child. For her, it's not a good work situation at all. She really should be having children come into her own home rather than trying to be your hired assistant with you there, and manage her own child. It may even be very confusing for Athena that you are there, but not responding to her as she needs you to.
Best of luck with whatever you do next for childcare.
I think the nanny is probably finding it hard to keep up with two toddlers with a growing middle, doesn't understand your pain situation, may be hormonal, and is probably thinking if she can't control your child it's going to undermine her authority with her own child. For her, it's not a good work situation at all. She really should be having children come into her own home rather than trying to be your hired assistant with you there, and manage her own child. It may even be very confusing for Athena that you are there, but not responding to her as she needs you to.
Best of luck with whatever you do next for childcare.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
Re: I need prayer
While I feel very sorry for you at the moment, I have to agree with what Celeste has said to you and also think that perhaps Athena may respond to the stimulus in a childcare environment; kids need other kids to learn socialisation skills which no parent can provide. It may do her no end of good to learn to share with others and interaction with her own peers will be a good learning curve and will act as a basis for preschooling.....a little discipline is not a bad idea and the terrible twos are not an easy time to manage for the two year old or the parent. If you can send A to a nursery even for a few days a week, it may give you a chance to heal and especially after your planned surgery you will need this calm time...A will have a chance to use her endless energy in a controlled environment with her peers. i dont think that you being ill will have a long lasting effect on her though so please dont beat yourself up about this.
Best wishes
Best wishes
PNE started 2003 following Vaginal Hysterectomy, pelvic floor repair and right oophorectomy; eventually after many tests had BilateralTG surgery Nantes 2004; following this tried many other treatments including 7 day epidural, ketamin infusions to no avail; Trialed and was implanted with a Neurostimulator in 2007- Dr Van Buyten Belgium, this has enabled me to manage my pain much better.
Re: I need prayer
I'm so sorry this has happened AM. You know you aren't a worthless parent and that's what really matters. I really understand your worries and fears as my daughter is just a year behind A. Being a mommy to a toddler and dealing with chronic pain is just plain HARD and nobody can understand it unless they've done it! I too worry about my daughter growing up an only child and being selfish and bratty. But no amount of socialization is going to fix that is it? Only God can change our selfish hearts and take away our sin through Jesus
I know it's hard, but try not to worry about how A will "turn out" in the future because of living around your pain. God is so much bigger than that. Maybe A will be a much more caring and merciful person because of your influence. God's got a purpose for your life and your family and right now that purpose includes PNE. And no matter what the future holds remember His grace is sufficient (2 Corinthians 12:7-10) and his plans are for your life are good Jerimiah 29:11, Romans 8:28 (which is probably one of my favorite verses) you can rest assured that all of this will work out for good whether you are healed or you have to deal with PN the rest of your life. That promise keeps me going day after day.
I understand your feelings that A would be instrumental to your healing. My daughter gives me a reason to get up some mornings because she needs my care! I too don't want to put my daughter in day care especially not just any day care. Have you considered looking into a Christian pre-school? I don't know if you have any in your area, but even in our small town we have one and they take kids as young as 2. I don't know if they would accept someone mid-calendar year, but it's possible. I would love to send my daughter to ours, but we can't afford it unfortunately.
Needless to say, I am praying for you as you know. Please feel free to call or email me if you'd like.

I understand your feelings that A would be instrumental to your healing. My daughter gives me a reason to get up some mornings because she needs my care! I too don't want to put my daughter in day care especially not just any day care. Have you considered looking into a Christian pre-school? I don't know if you have any in your area, but even in our small town we have one and they take kids as young as 2. I don't know if they would accept someone mid-calendar year, but it's possible. I would love to send my daughter to ours, but we can't afford it unfortunately.
Needless to say, I am praying for you as you know. Please feel free to call or email me if you'd like.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com