Anyone who will listen.
I FINALLY GOT APPROVED FOR DISABILITY. After 2 years and some great advice, like get a different lawyer, get this book and ect., the new lawyer had me on in 2 months. The Jugement even stated that the Drs. that denied me before were wrong. That one honest statement meant more to me than the money. Mailnly cause the money is all going to drs and hospitals, but the statement will stay with me forever.
So, for all of those out there still fighting the fight, stick with it.
Thanks for letting me finally say something positvie about my PN crap.
Doreen
Got It
Got It
Five pudendal nerve infiltrations with good results.
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Re: Got It
Hi Doreen,
Hooooooraaaaaaay!!!!
Wooooooooooo-Hoooooooooo!!!!!
It's about time! I can only imagine your relief. This has been such a long battle for you and I'm so very happy for you that there's one less thing you have to worry about. You were well over due with having a victory!
So, you've got a marathon month ahead of you. Please let me know if there's anything I can do to help!
Luv ya,
Karyn
Hooooooraaaaaaay!!!!
Wooooooooooo-Hoooooooooo!!!!! It's about time! I can only imagine your relief. This has been such a long battle for you and I'm so very happy for you that there's one less thing you have to worry about. You were well over due with having a victory!
I agree. You really can't attach a price tag to peace of mind.Quilter 2 wrote:The Jugement even stated that the Drs. that denied me before were wrong. That one honest statement meant more to me than the money.
So, you've got a marathon month ahead of you. Please let me know if there's anything I can do to help!
Luv ya,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Got It
This is wonderful news, Doreen. Once again we see the value of persistence which along with optimism is the most important strategy for all of us. Look for that big check in the mail !
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Re: Got It
Karyn & Don;
Thank-you. The check won't be that big but I'm sure the docs will be glad that they don't have to wait to be paid!! I really wish I could say we're going on vacation but no such luck. Off to AZ to be reamed by 2 more PT's and docs
Some of us are just plain lucky. HA HA
Thanks guys;
Doreen
Thank-you. The check won't be that big but I'm sure the docs will be glad that they don't have to wait to be paid!! I really wish I could say we're going on vacation but no such luck. Off to AZ to be reamed by 2 more PT's and docs
Some of us are just plain lucky. HA HAThanks guys;
Doreen
Five pudendal nerve infiltrations with good results.
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Re: Got It
Hey, congratulations, Doreen. This is great news! Maybe someday you will get to go on the vacation. 
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Got It
Violet;
I told Rod that before I have surgery and get layed up for possibly 2 years, we're going somewhere. I really want to see all my friends in CT. Since I've had this PN crap, I haven't taken a joy ride that far away. One other thing is really bad, but I want to sit on our motorcycle and just go down the driveway and back up.
Thanks to you Violet and the whole bunch of PN'rs that wouldn't let me give up. There sure were days that I wanted to.
All of my very best;
Doreen
I told Rod that before I have surgery and get layed up for possibly 2 years, we're going somewhere. I really want to see all my friends in CT. Since I've had this PN crap, I haven't taken a joy ride that far away. One other thing is really bad, but I want to sit on our motorcycle and just go down the driveway and back up.
Thanks to you Violet and the whole bunch of PN'rs that wouldn't let me give up. There sure were days that I wanted to.
All of my very best;
Doreen
Five pudendal nerve infiltrations with good results.
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
Sixth Injection left me with more burning, more pain, pain in buttocks.
Botox shot didn't notice any difference
Physical Therapy - Aquatic and Myofascial
External and Internal Manual Therapy on the obturator muscle.
3T MRI with Dr. Potter
2nd opinion with Dr. Hibner in Phoenix
Loretta Robertson PT Phoenix
Decompression surgery Nov. 1, 2011
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pomegranate
- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: Got It
I'm so happy you got the disability approval!
Lauren
Lauren
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.