Further pain developed

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: Further pain developed

Post by Faith »

A's Mommy wrote:faith,

Curious. How much Amitriptyline are you taking?

I ask this because I feel like it is much more effective than the Lyrica. In fact sometimes I feel like if I stopped Lyrica, I'd feel the same.

A's Mommy

PS: I'm only at 10mg Amitrip per night
AM,

I don't take Amitriptyline anymore. I couldn't get above 12.5mg because I was SOOO drowsy all day long. So I was switched to desipramine (another Tricylcic antidepressant) and worked my way up to 50mg, but felt nothing. My heartrate was fast (around 115) and it made me constipated so I weaned off and increased my Neurnontin instead. For me Neurontin helped a lot more than the TCA's. But everyone is so different. Maybe you aren't on a high enough dose of Lyrica? I take 2400mg of Neurontin which is pretty high.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
manon13

Re: Further pain developed

Post by manon13 »

It's interesting because I posted already and I have all these other symptoms as well. I
Last edited by manon13 on Tue Aug 11, 2015 3:29 pm, edited 1 time in total.
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: Further pain developed

Post by donstore »

AM,
I have read of someone on the forum who took 600 mg. of Lyrica per day although I believe it was off-label as the suggested max dose on the product info is 450 mg. per day.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
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Re: Further pain developed

Post by A's Mommy »

I wonder if I should go up on the Lyrica. I am only at 75 mg 2x a day.

With all these drugs come all these side effects though..... ugh. Thanks guys for your input. I think I'll make an appt. w/ my PCP as he is the most caring of them all so far.

Love
AM
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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