Health Organization for Pudendal Education

melissasev wrote:Thanks so much Charlie. I gets so frustrating and confusing. She did say that she was trying to break up some of the connective tissue then we would be doing internal work within the next couple of visits. Hermajesty-What type of treatment does your PT do on you. My pain flare is so much better this evening. My next appt is Thurs so I will see how I am feeling on Wed before I make any decisions. I have tried nerve blocks in the past. I had a total of about 5 of them. The first 3 helped alot, then the pain came back, and the last 2 put me in a flare. I have had a MRi with Dr Potter and there is definitely something muscular going on. This condition is just a roller coaster..Some treatments work for some, then others get into a major flare.

I think you are taking the right approach. Go to PT in a positive frame of mind and give it a chance. If it works - great , if it does not do not despair as there is other stuff you can try.

Regarding the 3T scan everyone I know who has been to Potter has said it was really helpful and recommended it . However again there is no real evidence that this is a reliable diagnostic tool. I am not saying it is a waste of time getting one but I would be weary of basing all treatment decisions on it. Lets say Potter really has found a way of diagnosing exactly where an entrapment is every time or ruling one out. Should n't she be getting nominated for the Nobel prize soon? Maybe it is a piece of incredible technology , I know the 3T MRI is being used for lots of other conditions. If you went by the Nantes criteria for surgery you would actually be considered a good candidate for surgery as your first nerve blocks helped for a short time. I am not saying they are right but it is something to consider. Please don't construe that as a recommendation for surgery, I am just presenting a different argument.

Your welcome, you sound like a good candidate!
As to what kind of PT I get, I had my pelvic joints corrected and have had no more PT work at all (proper pelvic joint correction is an event, not a process).
We have had patients who have had no prior benefit from myofascial PT, who got benefit from myofascial work AFTER the joints were corrected: Then the muscles can be worked into relaxation without a constant exacerbating factor working against the process.
But frankly having done 6 months of myofascial / excercise PT prior to the joint correction, I had no patience to return to it afterwards. The myofascial / excercise PT was a lot of work for a little temporary benefit, and the joint work was easy and resulted in immediate and permanent benefit. I was ready to get out of PT and on with my life.
At the moment I am focusing on issues found in my MRN: Possible entrapment of the nerve in the piriformis (awaiting injections), and S2 tarlov cysts (awaiting a consult to see if I am a candidate for surgery). The PT chapter of my treatment is closed
Remember YOU pm ME...I really want to help but my brain is on pills, am doing the whirlwind trip to Somerville, getting back Monday night and just found out my son might be having sinus surgery Tuesday morning...so a reminder would be really helpful! I have a PT in mind but wish to confirm my impression in person.

Thanks Charlie-Thanks so much for your imput, I appreciate it. The nerves blocks helped the first couple of times, then I got rear-ended 3 times in a matter of 3 months, and went back then that's when the blocks put me in a flare. I think my pelvis is all messed up. With this condition we have to have an open mind. I'm so glad I found this site, and thank you everyone for your support. Hermajesty- I will PM you after your seminar for that name. I'm excited to hear who you would recommend. I know my hips and body are all out of whack....Thanks again!!

At the PN Australian conference recently I was told by Dr. Bautrant that the obturator muscle/ nerve would cause pain in the inner thigh region. Investigation of the OI nerve might be a good place to start.

Catherine

so should i stop the pt and just concentrate on my massages that helped me?? i'm so afraid that if i continue the flare may get worse..ugh!!

Melissa,

You say that your PN problem is strictly muscular in nature. I think my PN pain is the same. I have a lifelong history of endometriosis, which I think put my pelvic muscles into spasm and put pressure on the nerve. Have you seen a gyno for endometriosis?

Lernica

Hi Lernica

I have seen a gyno for endo, but everything was fine..I'm just so afraid to continue the pT, if it is making my flare worse..UGH!! how are you doing??