Karyn's surgery
Re: Karyn's surgery
I live 3 hours south of the Orlando area. The first appt. is a 2 hour evaluation and then PT. Then 1 1/2 hrs. of PT the next 4 days. I had my records from Dr. Conway and Dr. Quesada sent there. I hope that is helpful. Judy
Symptoms came on so slowly they were hard to explain to anyone much less myself. Discomfort sitting one day and not the next. Foreign object feeling in various private parts. Doctor to doctor. Mis- diagnosed many times. Un-needed surgery, depression pills and finally a diagnosis of PN. EMG testing in NH. Unsuccessful nerve blocks. Will start PT in a few weeks. Finally I don't think I'm crazy!!!
Re: Karyn's surgery
Hi Judy,
Great idea to have your records forwarded! Wow! 1-1/2 hours for each PT session?!?
Now I'm even more interested to hear about how it goes! When I was going, my visits were only 30 -45 minutes long. At first, I thought that was kinda short but was told that "they didn't want to over do it with the patients".
Personally, 30 minutes was just fine with me. But now I'm wondering: what's the average time? Hmmm ... I think I'll start another thread!
Warm regards,
Karyn
Great idea to have your records forwarded! Wow! 1-1/2 hours for each PT session?!?
Now I'm even more interested to hear about how it goes! When I was going, my visits were only 30 -45 minutes long. At first, I thought that was kinda short but was told that "they didn't want to over do it with the patients".Personally, 30 minutes was just fine with me. But now I'm wondering: what's the average time? Hmmm ... I think I'll start another thread!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Karyn's surgery
I see that you have bee through heck with your condition with alot of misdiagnosis and nerve blocks with Dr. Quesada?
I have an appt with him this Wed and am quite apprehensive about this,can you shed some light on your experience
and are you doing better?
Dee
I have an appt with him this Wed and am quite apprehensive about this,can you shed some light on your experience
and are you doing better?
Dee
Re: Karyn's surgery
Hi Dee!
Quite honestly, I am not a proponent of nerve blocks. I had (2) rounds of bilateral PN blocks and ilioinguinal blocks with Dr. Quesada. I highly recommend sedation for the procedure.
Everyone is different, but I did experience horrendous pain flares after the blocks. The last set I had (July) gave me sit bone pain that never went away. Finally, after the 2 rounds of blocks, I had a lidocaine infusion which was completely ineffective. On a more positive note, I really do like Dr. Q and think he's a very compassionate doctor. Hopefully, you'll be able to discuss your concerns with Dr. Q prior to the procedure. Are you from the NH area or are you travelling?
I wish you the very best with your treatments. I agree with you about the EMG, too! Worst torture ever!!!!!
Warmest regards,
Karyn
Quite honestly, I am not a proponent of nerve blocks. I had (2) rounds of bilateral PN blocks and ilioinguinal blocks with Dr. Quesada. I highly recommend sedation for the procedure.
Everyone is different, but I did experience horrendous pain flares after the blocks. The last set I had (July) gave me sit bone pain that never went away. Finally, after the 2 rounds of blocks, I had a lidocaine infusion which was completely ineffective. On a more positive note, I really do like Dr. Q and think he's a very compassionate doctor. Hopefully, you'll be able to discuss your concerns with Dr. Q prior to the procedure. Are you from the NH area or are you travelling?
I wish you the very best with your treatments. I agree with you about the EMG, too! Worst torture ever!!!!!
Warmest regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Karyn's surgery
KarynKaryn wrote:Hi Dee!
Quite honestly, I am not a proponent of nerve blocks. I had (2) rounds of bilateral PN blocks and ilioinguinal blocks with Dr. Quesada. I highly recommend sedation for the procedure.
Everyone is different, but I did experience horrendous pain flares after the blocks. The last set I had (July) gave me sit bone pain that never went away. Finally, after the 2 rounds of blocks, I had a lidocaine infusion which was completely ineffective. On a more positive note, I really do like Dr. Q and think he's a very compassionate doctor. Hopefully, you'll be able to discuss your concerns with Dr. Q prior to the procedure. Are you from the NH area or are you travelling?
I wish you the very best with your treatments. I agree with you about the EMG, too! Worst torture ever!!!!!
Warmest regards,
Karyn
I have An appt. with Dr. Quesada. Can I request sedation for my nerve block? Krisssy
surgery 2004 for prolapsed rectum
surgery 2005 for obstruction due to abdominal scar tissue
surgery 2007 for obstruction due to abdominal scar tissue
2008-clitoral pain, arousal disorder, frequent urination began
2011-pelvic pain specialist-Dr. Robert Echenberg
MRI-Dr. Potter 8/11 showing scar formation of pudental nerve
appt. Dr. Conway-10/11
appt. for guided sedated nerve block with Dr. Quesada-10/11
appt. with Dr. Hibner-1/12
Re: Karyn's surgery
Hi Krissy,
Yes, you can request sedation. But I'd do it before you get there. If I remember correctly, you're supposed to withold food.
Yes, you can request sedation. But I'd do it before you get there. If I remember correctly, you're supposed to withold food.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Karyn's surgery
Karyn,
Ca you be sedated for the EMG testing? How are you feeling now? Krisssy
surgery 2004 for prolapsed rectum
surgery 2005 for obstruction due to abdominal scar tissue
surgery 2007 for obstruction due to abdominal scar tissue
2008-clitoral pain, arousal disorder, frequent urination began
2011-pelvic pain specialist-Dr. Robert Echenberg
MRI-Dr. Potter 8/11 showing scar formation of pudental nerve
appt. Dr. Conway-10/11
appt. for guided sedated nerve block with Dr. Quesada-10/11
appt. with Dr. Hibner-1/12