Health Organization for Pudendal Education

Hi all,

Thanks for thinking of me. It's been a rough road. However, I feel that I am ( was, whatever) entrapped in the most difficult spot to address: the distal Alcock's canal and the perineal branches. Dr. Hibner found entrapment at the proximal (posterior) end of the Alcock's canal during my TG surgery last November. That pulling and stretching sensation there is gone. The pain has moved more forward (anterior) and I believe that he did his best to reach all the way to the distal Alcock's canal. However, who knows what happened or what/where my entrapments were in the first place. Lyrica did a great job at masking my pain, but the side effects were too much for me, and honestly, my goal is to be med-free and just fixed by surgery. Right now I am continuing to trust that Dr. Hibner can fully fix me, and for now, it is a waiting game. I trust Dr. Hibner, and he is a kind and careful surgeon.

I know that some are going to Dellon or flying to Austria to see Aszmann and I have considered the latter. However, I really believe in the Neurawrap, and so I am continuing to work with the surgeon that has already operated on me once and has done two other procedures on me (Botox, nerve block).

Do not let my post discourage you. Many are being helped and cured by the traditional TG surgery. The distal Alcock's and the tiny, tiny perineal branches are so specific. Remember, everyone had their own "injury" and mine just happened to be my sweet daughter's skull growing against that area. God has me on the journey for a reason --- but I pray it ends SOON.

I'd like to leave the PNE cult... LOL. Wouldn't we all?? Love to you all!!!

A's Mommy

Glad to hear from you. Hope you are feeling improvement since your last visit to Dr. Hibner. Thoughts and prayers sent your way.

A's Mommy,

I think the same thing.....what lesson am I supposed to be learning from this? I haven't answered the question yet. My thoughts are with you.

cari

Hi AM,
I'm sorry to hear you're still in a lot of pain. I sincerely hope you find the relief you need soon. Just a couple of comments about those "tiny nerve branches" and neurowrap:

A's Mommy wrote:the most difficult spot to address: the distal Alcock's canal and the perineal branches.

A's Mommy wrote:The distal Alcock's and the tiny, tiny perineal branches are so specific

A's Mommy wrote:I know that some are going to Dellon or flying to Austria to see Aszmann and I have considered the latter. However, I really believe in the Neurawrap

Neurowrap can be used on the main trunk of the nerve and around the ST ligaments. It's purpose is to help prevent surgical scarring. It completely dissolves within 2 weeks. To the best of my knowledge, it can not be used on those tiny perineal branches because they're too small. Did Dr. Hibner tell you he could wrap the nerves in that area? I stand to be corrected if he did tell you he could, and please share his confirmation with us.
Warm regards,
Karyn

I had my left sided PN surgery on Monday...finally! Dr. Hibner found scar tissue encasing a long stretch of the nerve where the two ligaments meet I guess (not 100% sure on the anatomy there), and he's very optimistic for me. So far I'm not having any PN pain, just pain at the incision site.

Updates on surgery with Dr. Hibner: apparently he's not using cadaver tissue to repair the ligament unless necessary anymore. He repaired mine without using it. Also he's using a liquid form of the nerve wrap and placing it in areas where he can't put the actual wrap.

shljk wrote:I had my left sided PN surgery on Monday...finally! So far I'm not having any PN pain, just pain at the incision site.

That's such good news.

shljk wrote: Updates on surgery with Dr. Hibner: apparently he's not using cadaver tissue to repair the ligament unless necessary anymore. He repaired mine without using it. Also he's using a liquid form of the nerve wrap and placing it in areas where he can't put the actual wrap.

Thanks for that shljk