Health Organization for Pudendal Education

JAT.
Not much to add to the excellent advice above except to agree on the efficacy of Lyrica, It has really helped me a lot. Also, be sure to order an IC cushion from IC Network. I use the IC cushion as well as the Airgo cushion depending on the surface. If you can get a desk that elevates so you can stand while you transcribe, that would be quite helpful. I am an x-ray tech and the radiologists at my hospital both have these desks. You could make a case that you have a work related disability and that one of these desks would be a reasonable accomodation for that disability.

Best Wishes,

Don

Hi JAT,

You sound amazingly sane to me for all you've been through but as you may have read in some of the other posts, people like us frequently are told to see a psychiatrist so you're not alone there.

If there's any way you could get to New York to have the 3T MRI from Hollis Potter, I think there are a lot of patients on this forum who would recommend that be one of your first steps. It sounds like you have a lot of different things going on but Dr. Potter might be able to help you zero in on the major issues and help you determine if you have pudendal nerve entrapment.

Not sure of the cause of your nausea and vomiting -- sometimes it can be caused by pain or it could also be a side effect of your medications. Or as Calluna said, diverticulitis could be a problem. Some people get relief from medical marijuana but I don't know if it's legal in your state.

Sending you some cyber hugs,

Violet

Hi Jat,
Glad you have found us.You already know that you are in good company and will get such good advice here. So good that I have nothing to add except good luck with your physio. Hope your other medical appointments go well and take care.
Hellen