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Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: New to forum

Post by carolynm »

Gail,

Just reading through your posts and wish I could help. I have found Valium to be so useful, I don't know, maybe a muscle is spasming and is causing my PN to act up, I don't know. You must schedule your Dr. Potter MRI to get some answers here. Her wait time is outrageous so get going on that sooner rather than later. You must be your own advocate and keep trying to find answers. Do you have a decent PCP who will listen and give you the meds/treatments you need? What about a Pain Managment Specialist to do some blocks? We are here to listen when you need someone to talk to. We understand this kind of pain and adversity.

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
polarbear
Posts: 52
Joined: Sun Aug 07, 2011 7:28 pm

Re: New to forum

Post by polarbear »

Hi Cari,

Thanks for the encouragement and advice. A few people suggested Dr Potter, so I will check this out. I have a problem with traveling because I can not sit at all . I need to lay in the back seat of the car and NY is about 8-10 hours away. I also need to get a passport.

I keep being told by doctors in Canada to learn to live with pne and manage pain. I think a part of me has been giving up on a cure.

Thanks for giving me hope.

Gail
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