Health Organization for Pudendal Education

Gail,

Just reading through your posts and wish I could help. I have found Valium to be so useful, I don't know, maybe a muscle is spasming and is causing my PN to act up, I don't know. You must schedule your Dr. Potter MRI to get some answers here. Her wait time is outrageous so get going on that sooner rather than later. You must be your own advocate and keep trying to find answers. Do you have a decent PCP who will listen and give you the meds/treatments you need? What about a Pain Managment Specialist to do some blocks? We are here to listen when you need someone to talk to. We understand this kind of pain and adversity.

cari

Hi Cari,

Thanks for the encouragement and advice. A few people suggested Dr Potter, so I will check this out. I have a problem with traveling because I can not sit at all . I need to lay in the back seat of the car and NY is about 8-10 hours away. I also need to get a passport.

I keep being told by doctors in Canada to learn to live with pne and manage pain. I think a part of me has been giving up on a cure.

Thanks for giving me hope.

Gail