Yes Rob, it was very convenient he came to me Not exactly but I am in the UK and could not believe my luck when he decided to hold a clinic in London.
Getting treatment from him was never really an option and he didn't push it at all, I could not have been happier with the whole exercise and thought he was extremely nice.
Will keep my fingers crossed for your next treatments hoping they work.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Actually the MRN was a separate thing done over here and only a 1T so probably a bit rubbish although PN was seen at Alcocks canal. I was more interested in my piriformis however as that is where I get most pain and sciatica.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
He gave me my all important diagnosis and then recommended that I get guided botox injections which I have managed to do.
I had previously been diagnosed with lumbar spine problems/DDD but had no disc related sciatic nerve entrapment showing on an MRI and was sure it wasn't spinal but no one was listening to me . The thing was that I'd had a spinal problem in the past, so just had that tag stuck on me again but I knew there was such a difference in where the pain was. Dr Filler just made much more sense of my problems and actually listened to what I had to say. I still haven't found a permanent solution but at least I am on the right track because of him.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
glad to hear you are feeling better, and hopefully you are on your way to further improvement
I had my MRN in NYC, which filler read out in CA.
spoke at length after my scan to discuss the findings with one of filler's MRN techs who has worked closely with filler for a number of years
the tech was extremely helpful explaining the findings, and said they would evaluate me and treat as appropriate out in CA., but did not push me to come out there...very pleasant conversation just discussing the findings and treatment options..did not feel rushed and had all my questions answered
with several negative scans prior to the MRN, I was winding up in a situation similar to yours, not blaming something else as a spinal issue, but blaming me to some extent for "overstating" my problems
I was soooo frustrated..lived a lot of years with no history of going to doctors for non-problems, so being blamed somewhat for my own issues was infuriating!
with the multiple findings on filler's MRN, some of my doctors got on board, but some questioned the findings EVEN though they fit the symptoms perfectly, unreal
anyway, thanks for the details of your PN issues, and hope your condition continues to improve
Yes INFURIATING is indeed the word. Like you I have never been someone who bothered the medical profession very often and then only if really necessary.
It's also very unfair that they get it very wrong but we have to suffer the consequences. Well done us for not giving up, hope we can now get somewhere with successful treatment
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
I reviewed the website. I would be leary of any doctor who claims he's the only one that knows how to properly diagnose and treat a medical condition.
A review of the questions and answers in the FAQs section makes the hairs on the back of my neck stand up. Sounds hauntingly familiar to explanations offered by Dr. Deborah Metzger who injured so many women with her surgeries. She claimed she could diagnose "occult" (hidden) hernias. Dr. Browning claims to diagnose "occult" (hidden) mechanical disorders of the spine.
Dr. Browning claims that other specialists can't identify the PPOD disorder "because this disorder falls outside of their areas of expertise" and "the mechanically induced PPOD syndrome is a little-known and almost universally unrecognized disorder."
Dr. Browning claims it's nearly impossible to get a local doctor to treat you because "it is highly unlikely that they will be familiar with the diagnostic and therapeutic procedures to properly diagnose and most effectively treat you."
Dr. Browning does "not bill insurance companies for the services we provide and we do not accept insurance assignment."
I consider these red flags. This doctor may be legitimate and sincere, but there's no harm in being cautious.
pn_person wrote:If you don't mind, can you please let me know why those ligaments are not needed for movement, structure support, etc. I can't find an answer to that, and it seems counter intuitive especially regarding perineal decent.
Rob, I have never thought those ligaments are not important. That's why I went to Bautrant instead of having the ST ligament severed because I already had pelvic instability. Back then, the TG surgeons were not trying to spare the ST ligament which is why I went for the TIR.
Can I prove the ligaments are important or that they aren't? Not really. It's just that when I look at pictures of the pelvis and see how large the ST ligaments are my "common sense" tells me that they must have a purpose. And based on Vleeming's research I decided I didn't want them cut. However, if your nerve is entangled in the ST ligament or squished between the ST and SS ligaments I think you are probably going to have to have a ligament cut somewhere in order to relieve the compression/entanglement, right? So I wouldn't say you should never have any ligaments cut.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Not exactly but I am in the UK and could not believe my luck when he decided to hold a clinic in London.