Out in the wilderness
Re: Out in the wilderness
Does it make you sleepy? Maybe you could try taking it at a different time of day if it's OK with your doc.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Out in the wilderness
I would do as Violet has mentioned Edog.I remember I was told to take cymbalta before bed at first, to minimize that crash effect. Then take it earlier once more used to it. Def worth a go as I don't think it's nerve pain effectiveness kicks in straight away anyway.
Helen
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Out in the wilderness
Ok, so I took it before bed last night and had a very hard time getting going this
morning...maybe because I was suddenly wide awake at 4:30am (is that a side effect?) thought i wasn't going to make it today - now (4:45pm) I am feeling much better - not sure which is worse - crashing in the afternoon or crashing in the morning
but i will stick with it a bit
morning...maybe because I was suddenly wide awake at 4:30am (is that a side effect?) thought i wasn't going to make it today - now (4:45pm) I am feeling much better - not sure which is worse - crashing in the afternoon or crashing in the morning
but i will stick with it a bit
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Out in the wilderness
OOOps. Everyone is so different I guess. You should get used to it bit by bit but I take your point. I would give it a go a couple of hrs before bed tomorrow night. It is definitely affecting you!! just hope in the right way eventually. 
Helen
Everyone is so different I guess. You should get used to it bit by bit but I take your point. I would give it a go a couple of hrs before bed tomorrow night. It is definitely affecting you!! just hope in the right way eventually. Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
Re: Out in the wilderness
Well, that is a bit of a dilemma but maybe worth a few day's trial to see how it goes. Good luck! 
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Out in the wilderness
killing time at home now waiting to go get my mri done
kind of anxious about it - will let u know how it goes...
kind of anxious about it - will let u know how it goes...
Re: Out in the wilderness
ED, are you anxious about the procedure itself or the results --- or both maybe? I know some people are very claustrophobic when it comes to MRI's.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Out in the wilderness
the worst part of it was my low back pain,
the rest was fairly routine- waiting on results
(if there are any)
meanwhile, my symptoms are getting worse
now including pain in my glutes, rectum and difficulty with
urine flow...do u think i Should just find an out of town pne doc and skip
seeing local specialists (spine dr./rehmetologists)
i feel like i am just wasting time and money doing this...my pne
is now like an out of control wildfire.it seems to be progressing
and i am feeling scared and bleak.
the rest was fairly routine- waiting on results
(if there are any)
meanwhile, my symptoms are getting worse
now including pain in my glutes, rectum and difficulty with
urine flow...do u think i Should just find an out of town pne doc and skip
seeing local specialists (spine dr./rehmetologists)
i feel like i am just wasting time and money doing this...my pne
is now like an out of control wildfire.it seems to be progressing
and i am feeling scared and bleak.
Re: Out in the wilderness
That's what a lot of us end up doing -- traveling to a specialist.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Out in the wilderness
Hi EDog,
Sorry to hear of your situation. I can identify with how you are feeling and your areas of pain too. I think the best rule to follow is listen to your instincts and become the best advocate you can for yourself. We all got to this place of difficulty for a wide variety of reasons, but we share similar goals. Less pain and a return to our former abilities!! Good luck with your pursuits....
All the best,
FG
Sorry to hear of your situation. I can identify with how you are feeling and your areas of pain too. I think the best rule to follow is listen to your instincts and become the best advocate you can for yourself. We all got to this place of difficulty for a wide variety of reasons, but we share similar goals. Less pain and a return to our former abilities!! Good luck with your pursuits....
All the best,
FG
Unilateral pain began in 2009 from fall trauma.