nerve blocks & sex

[hope4eva]

thats interesting one thing i notice is i dont have more pain when sitting do u ? did ur deep pain ever go away ? wow i have never talked to anyone who had the same thing im sorry u going thru this .for me the deeper pain comes and goes the genital pain is constant and the feeling of always having to pee is constant also i notice when i pee i hesitate a lil bit like a spasm almost and sometimes it burns

[Violet M]

thats interesting one thing i notice is i dont have more pain when sitting do u ? did ur deep pain ever go away ?

At first sitting didn't bother me but as time went on it did.

Yes, the deep pain subsided fairly soon after PN surgery although it does come back mildly if I sit for long periods of time. Also the constant need to pee is mostly gone.

Violet

[hope4eva]

yeah i dont know and i have no diagnosis as of now so it would benifit me to i have to convince my ob for a referall to do more pt she dosent think its necessary cuz pt didnt help im kinda stuck

[Violet M]

Well, there are different kinds of PT and I don't know what type you had but I noticed you mentioned kegals several times. Did your PT recommend kegals? If so, she does not understand how to treat people with PN. But even the right type of PT does not always help, especially if you have a nerve entrapment. What is your gyn suggesting next?

If you didn't have the right type of PT, maybe you want to try to get a referral to a different PT who can help you with a diagnosis.


Violet

[hope4eva]

she didnt recomend kegals at 1st then a few wks in said they were ok ,she did internal and external pelvic therapy with finger didnt help me ,im still waiting on ob 2 tell me if i cant get mri then whats nxt ? so i dont know i could have a mild form of pn since it dosent hurt more to sit my pain levels are from 3 to a 7

[Violet M]

You could try some nerve blocks to various nerves to see if you can isolate which nerve it is. Since you don't have pain with sitting, maybe it's a different nerve? Maybe you could get a 2nd opinion from another PT? Or the 3T Hollis Potter might give you some answers. Just brainstorming ideas here. You don't really want to live with a 3-7 pain level, for sure.

Violet

[hope4eva]

yeah im hoping the mri will show sum answers mayb it is a different nerve .i dont know where id b able to get blocks as i still have state ct insurance no way i can get to conway ,mayb there is someone here who can i noticed there are some pt in ct that are pn aware i may b able 2 see ,im happy i can finally get the mri i was feeling hopeless ,i often get scared of what if i cant take care of my house and baby u know like if i get worse i already struggle with daily life chores .thanks violet

[hope4eva]

also i think its interesting u have had a similar deeper pain than me ive been on the ic boards and i cant find anyone that has a similar deeper pain ,i think if i have pn i probably have a more mild case since i dont hurt worse when sitting ,and can still maintain a decent quality of life within a certain pain leval 3-7 it being 4 most days .i do use ice packs to go every where i just use them like a pad ice is my main treatment since i hate the meds i use scull cap extract also i heard it helps nerves heal ,if this is another nerve hope the potter mri will show it and i can finally get proper treatment ! i could deal with a low pain leval if i had 2 but to think id be like this forever is not an option !!!

[Violet M]

You're right, the pain eventually begins to wear on you and chronic pain can cause permanent changes in the brain and spinal cord. Ice is great -- lots of women freeze water balloons or condoms and insert them vaginally to numb that deep inner pain. It's a little more slushy and not as intense if you mix a little alcohol in before you freeze it.

Violet

[hope4eva]

yes thats tru & im scared of that ,i tried the ballon and condom of ice for the deep pain it barley touches it its really high in pelvis and only in front past few days also my back pain is in same spot as deep pelvic pain the back pain is only left sided