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Re: How Did Your PN Begin?
Posted: Sun Nov 14, 2010 3:53 am
by Violet M
beth5646 wrote:Hello all. I am a new member and am glad to have found this group. I recently (June 2010) had my 2nd successful laminectomy and at five weeks out was getting ready to go back to work, when suddenly I experienced what felt like a lightening bolt enter at the bottom of my spine, go down my right leg and out my right heel. It felt like a 10 on the pain scale. I almost passed out. I was rushed to the emergency room by ambulance, and when it was all said and done my right inner thigh, vaginal and rectal area on the right side only was completely numb--no feeling at all. I was left with urinary and fecal incontinence and unbearable pain. I was taking up to 40mg of Dilaudid and 3600mg of Gabapentin around the clock every day. Over the last four months I have been slowly getting a little bit better every day. Two weeks ago I was finally able to move back into my home and I am starting to be able to take care of myself. The incontinence Is slowly getting better also. Has anyone ever heard of anything like this? I have been passed from doctor to doctor and none of them seem to know exactly what happened. The pain management doctor I am seeing now seems to think I may have an entrapped pudendal nerve. From what I have read the prognosis is not very good for this. I can't help but think this problem is related to the laminectomy I had just 5 weeks before. Does anyone have any idea what happened?? The pain I have experienced with this has been much, much worse than either of my back surgeries. If anyone has any ideas or information about this I will greatly appreciate it.
That must have been very scary Beth and I'm sorry you are still struggling with the recovery. Since you just had back surgery you have to wonder if there is a problem at the nerve roots. Did they rule out cauda equina syndrome?
What was the purpose of the laminectomy -- were you already having some symptoms?
Re: How Did Your PN Begin?
Posted: Thu Jan 13, 2011 1:19 am
by paulette
My symptoms also began after a laminectomy. Does anyone know why this type of surgery would trigger PN??? paulette
Re: How Did Your PN Begin?
Posted: Fri Jan 14, 2011 6:00 am
by rick
I had some symptoms, mainly discomfort (strange sensations) in my penis for a few years. Probably related to constipation problems related to childhood abuse by father, secondary; side effects of medication for depression, etc.
PN problems really started about 2 months after a fall on my buttocks in June 2005.
Rick
Re: How Did Your PN Begin?
Posted: Sun Jan 16, 2011 4:01 am
by CureSeeker
This is a bit emabarrassing. I am a male sufferer and my PN problems started when, at around age 14, being extremely immature I sort of put my penis in to a small olive oil bottle with a very tight and constrictive bottle neck opening - thinking the experience would be pleasurable. I actually went to sleep with my penis in that bottle. It was really a way to divert myself from boredom and even loneliness. I damaged myself from that point. Ofcourse I wish now that I could go back in time and kick myself because that event changed the course of my entire life. Dumb. Extremely dumb, I know. But the past is the past and what's done is done. I have to look to the future now and find solutions in the present.
Re: How Did Your PN Begin?
Posted: Tue Feb 15, 2011 10:49 pm
by JODDY
I have had Levator Spasms(spasms of the rectal muscles)for 19 years. I really think the Levator Spasms are caused my the Pudendal Nerve being entraped.Anyway, After seeing several GI and Colon -Rectal specialists, I finally found found a Colon- Rectal that give me a diagnosis.He said I had spasms of the rectal muscles. The only thing he did was give me some valium and sent me on my way. I have tried shock therapy(electrogalvanic stimulation)a lot of different medications,and I have seen two Physical Therapists. The last PT I seen, said I might have PNE. I have tried everything except surgery. I have read posts on other forums about people who got better and some who got worse after surgery. I couldn't imagine this condition being any worse than it is.
