Health Organization for Pudendal Education

Hi Melora and everyone, was wondering how you know so much about the location of your entrapment and specifics of your condition? I'm in Australia and we only have one specialist doing this type of surgery I believe. It's Prof Vancaillie. I've had an MRI which indicated entrapment left side but pudendal block was positive right side so he has proposed bilateral TG nerve release. Melora, have you been told about what to expect with your recovery and what symptoms are you suffering from presently and when are you scheduled for surgery? I hope everything goes well for you and life can begin happily once again.

Hi Dizzy! I do not know for certain about the location of my entrapment honestly. I saw a Dr. Martin and through external exam he felt I had a distal entrapment. Also, I had an MRI and it showed perineal muscle scarring that could be affecting my inferior perineal branches. I have had relief from a pudendal block, so I take that as a sign that it is the pudendal nerve. My symptoms are horrible vaginal pain of my back wall. Rectal tightness, spasms and perineum pain. Also, some labia pain, bladder spasms, altered sensation and burning pain as well. I also have a feeling of some part of the nerve being pinched. Unfortunately, I also have some general nerve damage from other issues.

I do not really know what to expect from surgery. I think it depends on what type of surgery you have. I am wanting Dr. Aszmann or possibly Dr. Possover (if I find he can do surgery of the perineal branches) to do my surgery. I was told by Dr. Aszmann most people can walk around fairly quick after surgery. Another doctor I considered that does TG approach, talked like I would need several days to feel like doing much. I am diving in so to say and just hoping for the best. I cannot sit, drive, bend or take my children places, sex is pretty much out from pain, no dates with my spouse, etc. I have been standing for about a year and miss my former life. I am housebound like you unless I ride in the back/lying down in a van.

I will probably have surgery in February. Are you going to have surgery?

I love Australia BTW, wonderful country! I hope you find relief and answers soon.....and also are to get back to the life you hope for!

Meliora wrote:Has anyone used Dr. Possover or know anything about his surgery? Thanks! I am not sure if I need Dr. Aszmann or Possover. I have additional issues that may need Possover, but like Aszmann very much from discussion.

Meliora, Dr. Possover's publication describes what he does in surgery:

http://www.pudendalhope.info/sites/defa ... urgery.pdf

"Full exposure of the pudendal nerve begins with the exposure of it´s
endopelvic segment followed by the transsection of the sacrospinous ligament which permits the further
dissection of the nerve downwards until the Alcock´s canal. The functional integrity of all exposed motoric
85 nerves is assessed before and after dissection/decompression of the nerves using intraoperative laparoscopic
electrostimulation according to the LANN technique"

Hi Violet and Melora,

I recently corresponded with Professor Oskar Aszmann and he told me that he was in Zurich to see Dr. Passover's Laproscopic surgery.According to him,Dr. Passover does only the Sacral-Plexus roots and doesn't reach the ligament grip or the Alcock's Canal.The surgery is abut an hour long and the patient remains in the hospital for a day at the most.

Melora,

Professor Oskar Aszmann operates on the dorsal and Perineal branches to the distal Alcock's Canal in females only.In men,its only the dorsal nerve.I hope that clarifies things for you.

Kind Regards,
Ali

Thank you Ali for letting me know. I appreciate the information. As you know it's a huge decision choosing a surgeon, as we all want a good outcome. I hope I will find relief and pick the right doctor. I actually may need both doctors....who knows! I will have more information soon.

Meliora

Thanks Ali,

Maybe Possover has altered his approach?

Violet

My mother just drove me 1000 miles to Houston for Dr. Ansel to doe surgery for PNE. Pure hell while only taking tramadol and neurontin. Will be in the hospital for 1-4 days, and in 1 week, back on the road. I'm terrified! Wish I had flown.

Violet, from my understanding of what Dr. Possover said, he can deal with the sacral roots and pudendal nerve. He just does not touch the micro branches, as to not cause any trauma to them, at least I think that is what he said. I would need to clarify again if I chose him for surgery. I somehow have ended up with Hibner right now, after really thinking Europe. Who knows what will be next!

Rj419, best wishes on your surgery. Flying for me has been the way to go, extra seat if you can. I am sorry your drive was so painful.

Melioria , God speed , sending you hugs and all of the best.

Well, it's been one month since the surgery in Houston. Driving back 1000 miles was pure torture, even with narcotics. I would definitely recommend flying!!!!!