Health Organization for Pudendal Education

Was reading down your last post (no mournful trumpet sounds tho' ) thinking, what about shingles? Glad that has been ruled out as it can hang around for a good while and you have been through such a lot to get low enough to let that be an issue ( I know that is how my Dad got shingles), but I'm also glad that your medical 'team' seem to be pushing beyond the norm and investigating more unusual problems. Well you wouldn't want to be ordinary now Calluna would you mundane medical problems? NO WAY!!
Phew! about it (very probably) not being long term, very pleased to hear that.
With Anne's Mum's story in mind, I have heard 'there is nothing much that can be done for PN' and you just' have to live with it,' which seems especially true of actual pelvic nerve entrapment, too many times recently. Although obviously it depends which medic ( where they are located and how clued up they are, even ones who should know!) but it does get VERY wearing not taking no for an answer. However, I don't think it's in my DNA
I do hope that things calm down appreciably Calluna and you have a lovely Christmas.
Helen x

Calluna, is there a possibility you have shingles?

nyt wrote:Calluna, is there a possibility you have shingles?

Apparently, that's been ruled out, but it sure does sound like it to me, too.

calluna wrote:I am told it is definitely not shingles, nor is it cellulitis or erysipelas. If anyone has any ideas what on earth it might be.....?

Calluna - I'm glad the redness is receding. Is the rash extending to your scalp and/or neck, too?
Has anyone prescribed a topical cream for you?

Definitely not shingles. I've had shingles before, on my back, and it was not like this.

Today it seems to have all become focussed on my left eye which is still nearly swollen shut, that area still bright red and very swollen. The rest of the rash - yes, it is across the scalp too on the sides of the head - it has faded completely during today. Still bumpy but not red any more. The skin is not broken anywhere, no blisters. My face is still very puffy, worse on the left.

I have only had 24 hours of antibiotics so far. Hopefully this time tomorrow it will be taking effect.

Edited to add: aaargh have just realised that the vision in my left eye is affected, very blurry and cloudy. Back to the doc tomorrow I do believe. Am taking no chances with my sight.

Please let us know how your appointment goes, Calluna!
Hugs,
Karyn

Yes Calluna please let us know what they say.
H x

Hi calluna
Iposted back a few days ago saying after giving it thought, your profile of pain is not like my mothers! Have you googled fibromyalgia ! Like temporal artharitas it is another problem Whitch you can actually see visual results of your suffering( Whitch I'm sorry but any thing Whitch manifests visually has got to be delt with! I wish you well ,and real very hopefully for you !!for any thing our medics can actually see! Puts you in a very good position!
Anne smith

Thinking about you Calluna and hope you are OK. Any progress with the anti-b?

Violet