SIJ Syndrome

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: SIJ Syndrome

Post by HerMajesty »

violet, that would be a big question mark because when somebody tells you that your ligaments are lax and cannot hold an alignment. 1 of 2 things is going on:

1. Your ligaments are really lax, as in permanently deformed and stretched, and cannot hold an alignment, end of story. I think I mentioned to you my husband frequently re-injures a shoulder due to a lax ligament. The shoulder can be re-corrected with Hesch, but it isn't going to stay forever like my pelvis does.

2. Your ligaments are only lax because of an underlying pattern of joint dysfunction. For example, in an upslip ilium, the sacrotuberous ligament is lax because the upslip causes less space between the two insertion points of the ligament.

I have no way of knowing which category you fall into...does this make sense?

Karyn - unfortunately the "windswept pelvis" is anything but common knowledge - it is an Advanced Hesch pattern. The Hesch paradigm of joint dysfunction is not taught in PT school as we have to pick it apart in research 1st to establish it as "evidenced based" (working on that!)...and Hesch continuing ed training has so far focused on Basic and Intermediate Hesch Method to the lumbopelvic-hip complex. When enough people are trained in that we can fill Advanced classes, and the eventual goal is to get people to the point where they can train in whole-body Hesch Method as he does every joint from the feet to the jaw. We are far from that but working on it! Meanwhile, I am unaware of anyone who corrects a lower windswept pelvis except for Jerry Hesch (sad since it only takes 10 minutes)...maybe Robert Shapiro of Gold Coast PT in New York, he was studying some Advanced Hesch but not sure what.
Lack of access sucks and I am trying to correct it.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: SIJ Syndrome

Post by Karyn »

Thanks for the reply, Hermajesty. Yup - it really is sad about the lack of common knowledge. Makes it very difficult for us to get appropriate treatment!
I certainly do appreciate your efforts to correct this and your contributions to the group!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Violet M
Posts: 7158
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: SIJ Syndrome

Post by Violet M »

HerMajesty wrote:violet, that would be a big question mark because when somebody tells you that your ligaments are lax and cannot hold an alignment. 1 of 2 things is going on:

1. Your ligaments are really lax, as in permanently deformed and stretched, and cannot hold an alignment, end of story. I think I mentioned to you my husband frequently re-injures a shoulder due to a lax ligament. The shoulder can be re-corrected with Hesch, but it isn't going to stay forever like my pelvis does.

2. Your ligaments are only lax because of an underlying pattern of joint dysfunction. For example, in an upslip ilium, the sacrotuberous ligament is lax because the upslip causes less space between the two insertion points of the ligament.
HM, thanks for the explanation. I fear that I fall into category 1 -- due to some other additional issues, I've been told I most likely have a genetic collagen deficiency.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
kat
Posts: 203
Joined: Fri Sep 17, 2010 3:44 pm

Re: SIJ Syndrome

Post by kat »

I don't have this syndrome, but my SIJ thing was off for over a day and it led to burning and numbness in both legs and the front of my pelvis.
PT realigned it and within 5 min. all the burning calmed down and feeling started coming back.
I'm not sure if PN people are more sensitive to SIJ issues than normal people, but I feel fine now.

If I can just get my muscles strong enough to hold my joints in alignment I will really by happy.

Good luck to all of you looking for answers.

Loves
Born with pudendal and obtorator neuralgia. 32 years of being misdiagnosed.
Surgery with Conway 7/14/10. Internal burning cured!
Currently in PT for many pelvic floor issues due to having PN for so long.
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