Excellent, glad that you've got one. I wonder if anyone else has? - or has been refused one?
I haven't sent any letter yet, and you are spot-on about an appeal.
I telephoned the Local Government Ombudsman this morning, and explained the situation to them. They've told me that despite what the council have said to me on the phone and by letter, I have to appeal against their decision. If they refuse to let me appeal then the LGO will take it up - and if my appeal is turned down and I feel this is not fair, then again the LGO will investigate.
So I rang the Adult Care Team who deal with appeals, and have an assessment booked with an Occupational Therapist at the council offices later this week. I did get put through to the lady who will be assessing me, and she was very surprised to hear that I'd been told that they couldn't take pain into account.
Will see how it goes....
Edited to add - I'm sure that not only do they have all the facts, they also understand them. There were several telephone conversations with team members and also with the team leader, we went over everything, distances, times, the lot. And then after that they just said well we are not allowed to take pain into consideration anyway, and your problem is entirely down to pain, you have no mobility problems as such because your legs have no functional problem.
In my case it is not the accumulating pain of PN, that increases through the day - that's not really the main issue for me here. These days I get much worse pretty fast if I have to walk any distance. I can stop and lean on something until it eases a bit, and then carry on. All the stopping means that it takes me ages to get anywhere, also as this goes on I tend to get slower, and there is a point where it is hard to continue at all. Standing still for too long will also mean that it gets a bit hard to cope. If I go anywhere in a car - which of course means sitting - I do use my cushion, which means that it is possible instead of impossible - and if I then try to walk, it is much more of a problem than if I try to walk straight from the house without a car journey first. This is two pain triggers in sequence and that seems to be what makes it worse. This is why the blue badge was so helpful, I could park closer and so manage to do things that I couldn't otherwise. But you know all that. Apparently I am still ranting, sorry about that...
