Meeting others

Treatment options for UK & Irish members; including VHI & HSE criteria for funding and E112 Applications etc.
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: Meeting others

Post by mary jane »

@ Rosemary I am now trying a new thing along my treatment and will update if it works or not. Serrapeptase- a systemic enzyme which supposedly helps autoimmune illnesses, inflammation and nerve pain. I ordered it via amazon today. It also says it dissolves scar tissue, be it old or new, and since I have scar tissue from previous bartholin abccess lancings, I'm hoping it will do something.
I also take Vit C daily, Vit B complex, a great probiotic (optibac- saccharomyces boulardii) for my yeast infection, Turmeric (anti-inflammatory) and 1 banana daily for potassium plus epsom salt baths for magnesium intake. I WILL REPORT AND POSITIVE OUTCOME FROM THIS. I'm hoping it might be of use for others.
I also really expect my body to HEAL since I am in my bloody 20s and I have never had major surgery done on me, but who can tell .
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: Meeting others

Post by mary jane »

@ rosemary I never removed my gland. I had it lanced (small incision -1/2 cm) 4 times on the same side. This created scar tissue which got irritated from an infection= nerve pain. My vulva is an electric fence!
I hope you find relief!
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
Rosemary
Posts: 309
Joined: Mon Dec 31, 2012 5:40 pm

Re: Meeting others

Post by Rosemary »

Hi Mary Jane

I read somewhere that 'your body is on your side' when it comes to healing - a phrase i keep in my head now. Like you I am much more conscious of my diet now - also have a banana every day - include other vitamin rich foods and have a spoon of cod liver oil each day.

Hopefully you have age on your side with all this and are gradually healing - nerves take their time - from what i have read feeling worse for a time can been a sign of nerves getting better.

Afraid i don't know enough to comment on the scar tissue - others may be able to help you though.

Take care now

Rosemary x
mary jane
Posts: 130
Joined: Sun Nov 03, 2013 4:13 pm
Location: uk

Re: Meeting others

Post by mary jane »

thank you, rosemary. it was nice reading that after a bad day :)
tiny bartholin infection triggered vulvar nerve pain.
Diagnosed vulvodynia Sept '13 (no burning but electric shocks, paresthesia, aching, buzzing)
Feb 14- Taking 50 mg Ami/Elavil
May 14-pain free with 50 mg Amitriptyline and 300 mg Pregabalin. Back to normal
Dec 15- weaned off all medication, pain free, wearing skinny jeans
April 17- pain returned, Amitriptyline 50 mg. Something doesn't make sense in my diagnosis.
Currently treating depression and anxiety
mikette
Posts: 47
Joined: Sat Sep 25, 2010 10:06 pm

Re: Meeting others

Post by mikette »

mary jane did serrapeptase work for you? which dosage did you take?
Post Reply

Return to “UK & IRELAND”