i'm just having a very bad day today. it hurts. I don't know why some days have been starting to feel better and then bam it has a hold on me again. it really flares up with a BM!!!! I'm so down today that my chest is hurting.Contact Information
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Well, I made my application in Janurary. Tomorrow it will be May and I still have not heard of an appointment date. I emailed the clinic with concerns of being forgotten becasue I had not heard from them and they said I was still in the process of getting an appointment with Dr. Gordon. i'm just having a very bad day today. it hurts. I don't know why some days have been starting to feel better and then bam it has a hold on me again. it really flares up with a BM!!!! I'm so down today that my chest is hurting.
i'm just having a very bad day today. it hurts. I don't know why some days have been starting to feel better and then bam it has a hold on me again. it really flares up with a BM!!!! I'm so down today that my chest is hurting.Re: Contact Information
Sorry to hear about the wait time, Chex. Are you taking steps in the meantime to help with your pain? The chest pain sounds like anxiety. Are you taking any antidepressants or anti-anxiety medications to help you deal with that?
Like I've said before, Dr. G. is not the answer to PN. He can only guide you in certain directions and make referrals. You still have to the master of your own health care plan.
Hope you hear from the clinic soon.
Like I've said before, Dr. G. is not the answer to PN. He can only guide you in certain directions and make referrals. You still have to the master of your own health care plan.
Hope you hear from the clinic soon.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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No, the chest pain was just sadness a couple days ago. Sometimes I get really depressed. Today is better though. I am on lyrica, cymbalta and elavil. yes sometimes I look to the appointment with Dr. Gordon as the final cure day. i'll have to keep that in mind that will not be the case or I will have another big let down.
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I'm glad you are taking Cymbalta, it's good for depression. I take it too. I'm also glad you are starting to recognize that your appointment with Dr. G. will not be your "final cure day". Sometimes I feel I know more about PN and the possible treatments than he does. (He is the director of a very busy pain clinic that deals with many different causes of chronic pain. PN is just a very small part of his practice.) In fact, I was the one who took the initiative to go to Cornwall for ESWT, and who asked for an MRI of my hips. I got both of these ideas from PudendalHope. Dr. G. would've been happy to just prescribe me drugs to deal with the symptoms, not the cause, of PN.Chex wrote: I am on lyrica, cymbalta and elavil. yes sometimes I look to the appointment with Dr. Gordon as the final cure day. i'll have to keep that in mind that will not be the case or I will have another big let down.
Have you considered consulting with Dr. Andrew in Cornwall? Have you read the posts here about him? You can type "Dr. Andrew" or "ESWT" or "Cornwall" in the search box above to see them. IMHO, if anyone in Ontario can offer a "final cure" to PN it is Dr. A., not Dr. G.
Best of luck, Chex, in your pursuit to an end of your pain.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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I got my appointment letter today. it will be in august. So that is still quite a wait.
No I have not heard of Dr. andrew from Cornwall. Dr. Gordon was the one mentioned when I clicked on the Canada link for Dr.s. I thought I was on the right track with him?
No I have not heard of Dr. andrew from Cornwall. Dr. Gordon was the one mentioned when I clicked on the Canada link for Dr.s. I thought I was on the right track with him?
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Dr. Andrew is a chiropractor who treats PN with extracorporeal shockwave. Dr. Gordon is a neurologist. They treat PN differently. Dr. A. treats PN by correcting biomechanical issues in the pelvis and by breaking down scar tissue extra corporally with a shockwave machine. Dr. G. prescribes drugs to relieve the pain of PN, and he will refer patients to other doctors for treatment, e.g. to interventionist anaesthetists for nerve blocks; to orthopaedic surgeons for hip issues, etc. Dr. A. is fairly new on the PN scene so that may be why you hadn't heard of him before. You can read more about his treatments on this forum as I suggested above.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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Dr. Andrew's name was just recently added to the list of Canadian docs on the website -- maybe that's why you didn't see his name. But like Lernica said, he's not an MD but a chiropractic doctor.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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DoubleEdgedSword
- Posts: 201
- Joined: Thu Oct 27, 2011 7:15 am
- Location: Ontario, Canada
Re: Contact Information
I too am still waiting to hear from the Wasser Pain Clinic.. I put my info in in January also, and called last week to get the automated voicemail saying my doctor will get the info & let me know when my appointment is.
Yesterday I called to leave a message for the lady who books specialist appointments to let her know I haven't heard anything & I'm still waiting..
I have a sinking feeling the info is sitting in my file & they forgot to contact me, & maybe the appointment has passed already & they're scrambling to get me another one to cover their butts.. It wouldn't be the first time that they've forgotten to contact me for specialist appointments.
In the meantime, I close in on my one-year anniversary of PGAD, and every night I pray that when I wake up in the morning, it will be gone.
If I don't hear back by the time lunch rolls around, they'll be getting a follow-up call to see what's up. I know of one girl who sent her info in after me, & her appointment is in July.. When I try to be my own health-care advocate, I feel I run the risk of becoming a PITA instead.. 
Yesterday I called to leave a message for the lady who books specialist appointments to let her know I haven't heard anything & I'm still waiting..
I have a sinking feeling the info is sitting in my file & they forgot to contact me, & maybe the appointment has passed already & they're scrambling to get me another one to cover their butts.. It wouldn't be the first time that they've forgotten to contact me for specialist appointments.
In the meantime, I close in on my one-year anniversary of PGAD, and every night I pray that when I wake up in the morning, it will be gone.
If I don't hear back by the time lunch rolls around, they'll be getting a follow-up call to see what's up. I know of one girl who sent her info in after me, & her appointment is in July..
When I try to be my own health-care advocate, I feel I run the risk of becoming a PITA instead.. On the road of discovery to see what is causing my PGAD.
Re: Contact Information
I'm sorry this is taking so long. With Pgad every day is like a year.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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DoubleEdgedSword
- Posts: 201
- Joined: Thu Oct 27, 2011 7:15 am
- Location: Ontario, Canada
Re: Contact Information
I wasn't too far off thinking my intake forms had been lost. My doc didn't send in the referral form, just downloaded the info, or had it sent to him, filled out his little part, then I filled out mine & sent it in. And I waited.. and waited.. I'd still be waiting none the wiser if I hadn't emailed the Pain Clinic asking if they even received it. They did, but not the doc's referral.
SO... Why didn't the clinic contact me or my doc to ask about the referral? Why keep the patient info there without any sort of follow up? I'd enquired twice about my referral to my own clinic and was told they'd phoned and were waiting for an answer..
When I emailed the clinic, they said they'd respond withing three business days, which they did. They said my doc could download the referral form from their website, then sign it and fax it in.. The specialist appointment coordinator said she'd get the doc to fill out one of their standard referral forms.. I'm in the middle trying to get both sides working together for ME, getting more frustrated as time passes..
When the specialist appointment coordinator started making it sound like my doc would be very inconvenienced by the proper forms, asking me to download then fax it to her because he was leaving on holidays, I lost my cool. I went from being my own healthcare advocate to raging PITA in about 10 seconds.
Patience only carries me so far. Waiting for something that was likely never going to happen annoyed me something awful. I was crying on the phone, trying to make her understand the pain I'm enduring, without anyone giving me any help. I know I put a bad word in there between "any" and "help"..
I gave her the contact information for the woman from the clinic, and she said she'd look into it and see if a standard referral form would be accepted. I've gone through about five or six pain cycles since my PGAD started, so I sure hope they get this sorted out and I can start exploring my options with the help of the Pain Clinic.
SO... Why didn't the clinic contact me or my doc to ask about the referral? Why keep the patient info there without any sort of follow up? I'd enquired twice about my referral to my own clinic and was told they'd phoned and were waiting for an answer..
When I emailed the clinic, they said they'd respond withing three business days, which they did. They said my doc could download the referral form from their website, then sign it and fax it in.. The specialist appointment coordinator said she'd get the doc to fill out one of their standard referral forms.. I'm in the middle trying to get both sides working together for ME, getting more frustrated as time passes..
When the specialist appointment coordinator started making it sound like my doc would be very inconvenienced by the proper forms, asking me to download then fax it to her because he was leaving on holidays, I lost my cool. I went from being my own healthcare advocate to raging PITA in about 10 seconds.
Patience only carries me so far. Waiting for something that was likely never going to happen annoyed me something awful. I was crying on the phone, trying to make her understand the pain I'm enduring, without anyone giving me any help. I know I put a bad word in there between "any" and "help"..
I gave her the contact information for the woman from the clinic, and she said she'd look into it and see if a standard referral form would be accepted. I've gone through about five or six pain cycles since my PGAD started, so I sure hope they get this sorted out and I can start exploring my options with the help of the Pain Clinic.
On the road of discovery to see what is causing my PGAD.