A's Mommy: Thank you so much for your advice and kind wishes. My way of thinking right now is that I need to go conservative as much as possible because even though I have bad pain sometimes I can still sit (using a pad to help prevent further nerve damage), work, do my own chores, etc. and surgery at the very least would put that on hold during the recovery period. I understand where you're coming from though, and I wish there was a better way to distinguish between entrapments and other neuropathies. As it is I only have my symptoms to guide me and help decide treatment. And I won't lie, I'm apprehensive about the injections and the idea of surgery plain scares the hell out of me. It's a tough decision to make and I'm just praying to God that I'll make the right one when the time comes.
Stephanie: You got it right. In spite of dealing with this for 8 years I have been very lucky to lead a normal, pain and symptom free lifestyle about 80% of the time. Although I'm still dealing with the flare-up from last Oct. making this the 2nd worst epidsode I've had so far.
I hope I can pinpoint the cause of the pain and manage it. Seems like most people can attribute their pain to certain activities, eg sitting, biking, etc. but mine just seems to come and go as it pleases. Have found that stress can bring a flare on or make it worse, but not always. Nothing seems to relax things like a nice cold beer or two though, I'll drink to the health and recovery of everyone here the next time I have one
Regards,
Nick
Weeks to Months long episodes of pelvic pain that go in to remission since 2002. Primary complaint is constant rectal pain.
Diagnosed with Pudendal Neuropathy by Dr. Antolak Dec. 2010. Now using self-care.
Currently trying to find cause of neuropathy. Trying chiropractic treatment to address misaligned pelvis and trying to rule out other causes for pain before taking next steps in PN treatment.
