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Re: phisiotheraphy

Posted: Fri Apr 03, 2015 12:12 am
by Patty
I have been told I only have tight muscles. But when I go to the vulvodynia clinic and they do the Q tip test it sends me into a flare. So it does not suprise me that a simple touch can be really bothersome. There are multiple nerves in this area. Someone posted a picture a long time ago but I don't remember which thread it was in.

Re: phisiotheraphy

Posted: Sat Apr 18, 2015 2:32 am
by Sarajoy
Hi Laura, I just responded to you in the other thread, but did not realize you'd been having this problem since last year. I can tell you that I think clenching my pelvic floor muscles all the time aggravated the problems and stopped me from getting better. I don't think it caused the initial pain, but I do think it aggravated things.

Check out this link for a Dr. Moldwin. I think he is a urologist in NY. I did not see him. I just followed his advice for taking hot baths twice a day, meditating, stretching and taking low dose valium when I was in discomfort. That was when I started feeling better. It took about a month.

http://bio-medical.com/news/2002/09/pel ... sfunction/

I can't promise it will help, but I don't think it could hurt either.

Also, When you are seeing doctors, do they actually know anything about PN? When I saw a uro he initially thought I had IC because that is what he sees. Even my UroGyn did not really understand what was going on. She referred me to a therapist who specialized in women's health who luckily had seen this before. And then that one had me doing kegels...so I switched to another one. I also think that IC, PN, vulvodynia...they are all these overlapping things. I don't really think the doctors understand what is going on! I guess I'm just saying that the average gyn probably has no clue so I would not trust him or her to know what is going on with you.