Health Organization for Pudendal Education

bled wrote:Still, a patient and especially a moderator like yourself that reports complete success with surgery has some clout. Food for thoughts. Carpal tunnel syndrome surgery has a 70% to 90% success.

Bled, I don't see it as a matter of having clout. It's just a matter of telling my own experience.

I would be interested to know, when you talked with Dr. Weiss did you ask him why he doesn't believe in PNE anymore and why he advises against surgery? That is a rather strong statement to make so the obvious question would be, what is the rationale behind his opinion? To be of the opinion that pudendal nerve entrapment doesn't exist you would have to believe that it is impossible for the pudendal nerve to be compressed by the sacrospinous and/or sacrotuberous ligaments, right?

I believe that it is difficult to accurately diagnose pudendal nerve entrapment because it's in such an awkward, difficult to reach area deep in the pelvis and can have similar symptoms to other diseases. And I think that some people are given the wrong diagnosis sometimes leading to an unnecessary surgery. But logically, I'm not sure you can say categorically that it's impossible for a nerve to be compressed by ligaments that are in such close proximity to the nerve. Especially, when people age, the ligaments can become hardened, thickened, and sclerosed as mine were, which makes the risk of injury due to nerve impingement worse.

Violet

Violet, I was not very impressed and in any case seeing him is not practical for me. The short answer is that I don't know if his opinion is based on mere surmise or valid observations. Maybe patients seeing him could report here.

Good luck with making your decision, Bled. You can do a search in the upper right search bar on "weiss" and see what has already been reported on the forum.

Violet