Health Organization for Pudendal Education

Violet,

I wanted to let you know that my Physical Therapist thinks I have Ehlers-Danlow Syndrome and that is what's causing my S.I. Joint Problems. My S.I. Joints have started popping (subluxating?) again.

I score an 8 on the Beighton Score.

I'm still getting pretty good relief from the Pudendal Nerve Block. I have a lot of pain in my tailbone still and am seeing my Pain Management Dr on Monday for a follow up of the PN Block & to set up the bilateral tail bone nerve block (don't know the actual medical term of it yet.)

I feel like this would end the rest of the pelvic floor pain as it's mostly located by my tailbone now with small flares from the Pudendal Nerve.

I hope this might help shed more light onto the issues.

Thanks for all your help Violet! I cannot thank you enough. I'm going to look into the S.I. Joint Prolotherapy.

Take Care!

Violet - You have mentioned visceral manipulation a few times. Do you know of any pudendal nerve patient who has benefitted from it?

Yes, I had a friend who tried visceral manipulation a few years back. She improved and moved on with her life. I can't remember what her username was but I think she posted back on the old pudendal.info forum.

Chimommy, I don't think prolotherapy would be contraindicated if you have ehlers danlos syndrome but I can't say for sure. My understanding is that too many prolotherapy injections can cause scar tissue to form where the injections are given so you might not want to have a lot of prolotherapy injections but maybe a few would be helpful.

Violet

Thank You Violet! You were also correct on the coccyx being a separate issue. It turns out I have a Greenstick fracture in my coccyx and it's actually moving around.

Thanks for all the advice!

Ouch, that sounds painful! What treatment are your doctors recommending for a fractured coccyx?

Violet

Violet,

I've only been offered the nerve block for the coccyx.
If I think back, I would guess that I beyond it about 6 years ago in a fall (I couldnw sit for weeks).

I believe I broke it a second time lifting things that were way to heavy for me. As afterwards I couldn't sir for weeks again.

When I do research on the coccyx, I don't see any steps between nerve blocks and surgery. It also says it normally heals itself?

Is it not possible to put pins in to reattach it or some kind of bone cement?

I'm in a whole new field now as I've never broken anything before.

Thanks Violet,
Jayda

Should I be getting an xray or MRI? I have no imaging of my coccyx. The Dr dxed it by moving it and feeling it. Will he be able to see it during the nerve block with the live xray?

Thanks Again,
Jayda

Yes, he should be able to see it if he's using fluoroscopy but if he's doing a nerve block he may not be looking for a coccyx fracture on the x-ray and could overlook it. He may just be looking for the bony landmarks that will show him where to place the nerve block. I'm not sure what the typical treatments are for a coccyx fracture. You could go to coccyx.org and ask over there.

Violet