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Re: New Person with Pudendal Nerve Disorder

Posted: Fri Oct 26, 2012 4:56 am
by konedog4
Update - approximately 1 week after Shockwave Therapy: I have noticed several things..

1. I still have post-therapy alcock's canal pain bilaterally, which is normal. The pain decreases a bit each day.
2. I have an increased tolerance to sitting.
3. I can now stretch and not have any noticeable nerve soreness afterwards. I am really working on my hamstrings and buttocks. Before, this always caused a flare in symptoms.
4. I go back to work tomorrow after having 4 off days. I feel like I can sit again fairly comfortably without setting back any potential recovery. I am still sitting on cushioned pads with perineum cut-outs.
5. I can sneeze and not get pudendal pain shooting through my groin.
6. I have more feeling in my perineum and "other" areas.
7. My bowel feels a bit more easy to pass, although again, it is too early to tell, as there is still some perineum swelling due to the therapy.

I think it is too early to draw any definitive conclusions. I will know more this coming week and will continue to post.

If my improvements are constant and permanent, I will definitely consider going back for more therapy.

kone

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Oct 27, 2012 12:28 am
by Violet M
Hi Kone,

Thanks for the update. It sounds somewhat promising at this point and I hope you continue to see signs of improvement. ;)

Please be careful not to overdo on things -- that is always a huge temptation as you start to improve.

Best,

Violet

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Oct 27, 2012 3:15 am
by konedog4
Thanks Violet, I appreciate your advice. I am being very careful to not "undo" any potential progress that might have been made through Shockwave Therapy. I am taking it very easy with light stretches and walking. Hopefully, I will have more to report (positive that is) in the future.

kone

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Nov 03, 2012 2:41 am
by konedog4
Two weeks after Shockwave Therapy: I can sit on cushioned chairs for a much longer time now with very little discomfort. I can stretch my groin and legs without any aftereffects. I am on half of my medication (clonazpeam) and hope to decrease it further this coming week. I can exercise again mildly without any pain. I remain optimistic that the treatment was helpful based on my feeling better and doing more things without pain.

kone

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Nov 03, 2012 4:07 pm
by Lernica
Yay!

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Nov 03, 2012 5:22 pm
by janetm2
How wonderful for you Kone. Glad to hear there is real improvement. Hope it continues.
Janet

Re: New Person with Pudendal Nerve Disorder

Posted: Sat Nov 03, 2012 5:44 pm
by Alan1646
Thank you very much for posting your news. I wish you well.
Alan

Re: New Person with Pudendal Nerve Disorder

Posted: Sun Nov 04, 2012 12:20 am
by Violet M
This is great news, Kone! I guess this means you will likely be going back for more treatments -- and for good reason if they are helping you.

Violet

Re: New Person with Pudendal Nerve Disorder

Posted: Wed Nov 07, 2012 4:18 am
by konedog4
Dr. Andrews' treatment definitely helped me. I am not cured yet as I can still feel symptoms, but I am much better. The full results of the treatment cannot be known yet, but will be apparent in the weeks to come. Dr. Andrews advised at least a 6-8 week healing period before deciding on any more treatment. The week in Cornwall is an expensive one, and all out of pocket expense, so I hope I recover enough so that I don't have to go back, however, finances permitted, I will go back to have another treatment if I do not fully recover. I really want to get my physical life back, as we with PN all do. My case is perhaps unique in that I know the exact event that caused my PN (bike seat) and where I was compressed. Dr. Andrews was able to identify my areas of entrapment and treat them effectively. I was very impressed by his knowledge of the pelvic area and likely entrapment areas. kone

Re: New Person with Pudendal Nerve Disorder

Posted: Wed Nov 07, 2012 2:24 pm
by Jax87
Very exciting! I'm so happy for your improvement. I think Dr. Andrew's treatment can definitely help some people. Keep us posted :)