Health Organization for Pudendal Education

In response to some people who have asked whether men can get this - I think yes, and I have been experiencing something similar for twenty years or so, and even before I had the classical sitting pain and was left to wonder what was wrong with me. The feeling is not constant, it comes and goes, sometimes mild and other times strong, and it is very uncomfortable and painful. I have to constantly massage the perinneal/genital area to relieve the symptoms, and it is very embarassing to do it when I am outside home. It is at a peak for about two hours following bowel motion. Physical stress like long walks, lifting or bending will almost always bring on this symptom and will usually last for a few hours. Strangely enough, taking alkaline citrate sometimes helps to reduce the symptoms for me.

http://www.tvguide.com/News/Persistent- ... 59179.aspx
If anyone reads the comments!!!! sorry can't comment far too !!! Thing is, if it is pudendal related, how can I be mad at these people, 5 years ago I would possibly have had similar ideas.
Helen
A bit more of the show but no mention of anything medical or pudendal. Annoying!
http://www.jeffprobst.com/posts/2620_sh ... index.html

Couldn't get those links to work, Helen. Is it just me?

Sunil posted a newspaper article in a different thread but I wanted to discuss it here.

http://tinyurl.com/a7g3d3v

The article makes this claim: We now know that a chemical imbalance in the brain marked by high dopamine levels accounts for the distressing problem known as Persistent Genital Arousal Disorder where a woman feels perpetually aroused - a real nightmare for the women concerned.

How do "we" know this? There are one or two scholarly articles that I can find that suggest dopamine imbalance may be the case for one or 2 women studied. I know of a lot more cases than that, of women who had PGAD from PNE.

Violet

No, its not just you Violet. This link works - I hope.

Re increased dopamine levels being associated with PGAD - it does seem to be clear that some cases are associated with dopamine imbalance. But I think the overall picture is far from clear. I've found one case where reducing dopamine levels with Varenicline has caused the symptoms to go - but also, paradoxically, an anecdotal account of one case where a women developed PGAD when she started taking a prescription dopamine agonist (for Parkinson's).

However I think we do already know that damage to the pudendal nerve can cause this symptom.

Thanks Calluna

calluna wrote: However I think we do already know that damage to the pudendal nerve can cause this symptom.

Precisely! I just wish this fact was mentioned and clinically associated with this problem more often. It is only sensible, medically to accept this.

Today, whilst browsing through a ‘glossy’ magazine in a coffee shop here in the UK, I read an article about G-spot injections. Yes, that’s right ! Apparently one of the newer treatments now available and proving popular is to have this erogenous zone pumped up with botox or something similar, pretty much guaranteeing ‘fireworks’ every time.

To be honest, I generally felt rather saddened that women would go to such lengths, but the final paragraph also made me very angry, mostly because of the flippant way it was written, and I quote: “G-spot injections do not come without risks though. Side effects reported include infections, urine retention and even – wait for it – a sensation of constant sexual arousal.”

Perhaps this procedure should come with a warning that potential customers firstly read a few of the posts on this forum and then decide whether the fireworks are really worth the risk. Whatever next !

Susanjane wrote: “G-spot injections do not come without risks though. Side effects reported include infections, urine retention and even – wait for it – a sensation of constant sexual arousal.”

Perhaps this procedure should come with a warning that potential customers firstly read a few of the posts on this forum and then decide whether the fireworks are really worth the risk. Whatever next !

You are right, Susan, the way it is written, some unsuspecting people might see the words "sensation of constant sexual arousal" and think that's a good thing. How sad...

Hello,

Has anyone tried and had success with taking Bupropion (marketed as Wellbutrin, Zyban, Voxra, Budeprion, Prexaton, Elontril or Aplenzin)? That is what my Doctor gave me and I am hesitant to try it. I want the PGAD symptoms to go away so badly but I am so afraid this won't work and I really am uneasy taking prescription drugs. I showed the Dr a list of drugs that others have had success with but she went with this Wellburtin.

Any thoughts would be much appreciated.

I am also going to try a PT that specializes in the pelvic floor...hoping so badly for relief.

All the best,

Jenny

Not tried bupropion, nor have I heard of anyone who has - but I can see why your doctor thinks it might help. This stuff alters dopamine levels, and there are documented cases where this has helped with PGAD. Definitely worth a try, I'd say! Your doctor seems to have been doing her research and thinking about what might help, I would be quite impressed by that. And she's picked a well-understood medication, which is always a good thing, if possible.

With this condition, what works, what doesn't, and why - we are still finding out.

All of us would much prefer not to be taking any meds at all - but it comes down to quality of life, really.

double post