Hi Ali,
All the best for your recovery. It's heartening to hear that there have already been improvements. You are a real PNE pioneer!
Stephanie
Dorsal nerve
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Stephanie P
- Posts: 74
- Joined: Mon Oct 11, 2010 10:06 am
Re: Dorsal nerve
Pudendal neuralgia, diagosed as ischial bursitis, from 1985. Worsened by fall in 2003. Bilateral TG surgery in Nantes 2004. Nerve flattened both sides. No improvement, still cannot sit.
Re: Dorsal nerve
But ... you're only a couple of days out of surgery, hon! I understand you feel anxious, but please give it several more weeks, so things may heal properly. Most importantly, do NOT do anything that aggravates your nerves. I have such high hopes for you!AliPasha1 wrote:However,the burning penile pain and Urinary burning is still there which is making me anxious because tha was the primary reason for thi surgery.
Warmest of regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dorsal nerve
Hello All,
Why I never saw Dr. Potter addressed the perineal branch in any of MRI reports ? Based on what I have learned here, it is one of the three PN branches. So, it shouldn't be ignored, right ? or maybe she mentioned it under different name ? Anyone knows ? M.
Why I never saw Dr. Potter addressed the perineal branch in any of MRI reports ? Based on what I have learned here, it is one of the three PN branches. So, it shouldn't be ignored, right ? or maybe she mentioned it under different name ? Anyone knows ? M.
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
Re: Dorsal nerve
Hello All,
I am wondering if TG approach can decompress the perineal branch or not ? Does anyone knows ? Many thanks, M
I am wondering if TG approach can decompress the perineal branch or not ? Does anyone knows ? Many thanks, M
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
Re: Dorsal nerve
Hi Mulan,
My perineal branch was decompressed by Dr. Conway. If you're interested, you can find my Op Report under Case Updates.
Best of regards,
Karyn
My perineal branch was decompressed by Dr. Conway. If you're interested, you can find my Op Report under Case Updates.
Best of regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Dorsal nerve
No kiddding!!Violet M wrote:Hey Ali, you don't waste any time do you.
Wishing you all the best in recovery, Ali.
Sincerely,
susibee
Vulvodynia diagnosed '01; symptom was occassional vulvar itching/rawness after sex.
Autumn '10, localized clitoral and left labial burning after sex
March '11, new left buttock pain, worsened clitoral/left labial pain/burning.
May '11, increased sitting pain.
Summer '11, pain decreased/plateaued to 0-4/5.
Treatment: 75 mg nortriptyline nightly, definitely helps; PT x 4, didn't really help.
Consults with Hibner and Dellon, left me with questions.
Next step: MRI in NYC or VT.
Autumn '10, localized clitoral and left labial burning after sex
March '11, new left buttock pain, worsened clitoral/left labial pain/burning.
May '11, increased sitting pain.
Summer '11, pain decreased/plateaued to 0-4/5.
Treatment: 75 mg nortriptyline nightly, definitely helps; PT x 4, didn't really help.
Consults with Hibner and Dellon, left me with questions.
Next step: MRI in NYC or VT.
Re: Dorsal nerve
Still confused regarding perineal branch. 
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011
Re: Dorsal nerve
Hi Mulan,
I am not sure that how Dr Conway addressed the /DorsalPerenial dorsal branches in Karyn's case.What I understood from Dr. Hibner or Dr. Aszmaan it is imposible to do so.It requires another incision.
Dear Karyn's could Dr. Conway show any photographs of the surgery decompressing the Perineal/dorsal branches of the Pudendal nerve.
Stephanie P,Karyn thanks for the kind words.
Kind Regards,
Ali
I am not sure that how Dr Conway addressed the /DorsalPerenial dorsal branches in Karyn's case.What I understood from Dr. Hibner or Dr. Aszmaan it is imposible to do so.It requires another incision.
Dear Karyn's could Dr. Conway show any photographs of the surgery decompressing the Perineal/dorsal branches of the Pudendal nerve.
Stephanie P,Karyn thanks for the kind words.
Kind Regards,
Ali
Last edited by AliPasha1 on Thu Apr 14, 2011 4:36 pm, edited 1 time in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: Dorsal nerve
Ali, good luck on your recovery! Sending you healing thoughts and wishes.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Dorsal nerve
Hi Ali,
If TG approach doesn't address dorsal branch, does it address perineal branch? if not, does another incision which addresses dorsal also address perineal branch ? Does anyone know ? Many thanks, M.
If TG approach doesn't address dorsal branch, does it address perineal branch? if not, does another incision which addresses dorsal also address perineal branch ? Does anyone know ? Many thanks, M.
Symptom started 10/2010,sitting pain started 02/20/11. 1st injection 3/25/11. PT started 03/29/11. 2nd injection august,2011