Health Organization for Pudendal Education

Ive always been interested in this. Though doesn't look like the UK are going to legalise it anytime soon.

Would it be too personal to ask what strains are helping you folks with the pain. Someone told me you most likely need a little thc in it to get true relief. My doctor is working to get me registered to use it. Please help me if you can. I would like to try vaporization first as I do not like the idea of smoking. My pain lately is really putting me down....literally to bed for over half a day. This is not living...it is just existing.

I have tried six surgeries, six stim trials, close to forty injections, nothing has really helped me. Anatomically my organs are displaced and I have a feeling of fullness and pressure all the time. Inserting a pessary makes the pain worse. I do sometimes take a small tampon and wet it in warm water then insert it to help the pelvic floor pressure. There are days when pne makes me sick.

In addition to the pain the fatigue has become a huge issue for me. Even provigil no longer helps.

Over the years that this site has been up and running does anyone know the most popular drugs currently being used. If cannibis is a bust, I may look into a pain pump implant. Please, I am sincerely asking you to help me as I am not in a good place right now!

Sorry, I don't know much about marijuana or the different strains. Have you tried suboxone, Grammy? It is an opioid with naloxone in it so you are not likely to develop a tolerance to it as you would with most opioids.

Violet

Hi Grammy,

I'm a registered MA Medical Marijuana patient and have found this very helpful with pain management. Currently, I take a few puffs in the evening with a pipe, but am looking into other delivery methods - there are MANY besides smoking or vaping it. I've previously tried topicals, but haven't found them to be even remotely effective.

A couple of things to consider:
1. Marijuana and everything that goes with it is very expensive. Nothing is covered by health insurance.
2. You would have try lots of different strains to find out what works best for you. There really isn't a one size fits all strain.
3. With the right strain, it is possible to achieve pain relief without feeling "high".

Here's a link to Leafly - I hope it helps!

https://www.leafly.com/news/cannabis-101

Kind regards,
Karyn

I live in a state that has Legalized medical & recreational use marajuana. I have used the CBD and CBD/THC blend and have been disappointed in the results. I had no relief from pain, and in fact, it upset my stomach. I realize this has helped others for pain, but don't believe it is effective for PN.

Asking once more for a strain that works but does not turn you into a zombie.

What strain of mmj do you use. I found mmj drops high in thc made me jittery...not high...just jittery. Perhaps it needs to be smoked to really work? Does anyone know about this. I never touched marijuana and at seventy I feel strange doing this but I will do anything to get rid of pne!

One other thing that I was told by a pain dr. Unlike opiates, marijuana does not suppress respiration. There is not a case of someone dying from using mmj. Problem develops when you start to add other things to it!

my Pain Clinic is still pushing this. I have tried vaping straight Cbd, thc, and a one to one combo of thc and Cbd, makes me sleepy but does not much else for me. There are so many strains you do not know where to begin! I wish there was one popping up on our site that others have found helpful.

Hi Grammy,

I am trying it right now. I take CBD oil sublingually and then I swallow it. It's in the "gold" category, but I think that category may be brand specific. I am doing much better, but I started this last week one day after I started a new drug (nucynta), so it is hard for me to know which of the two (or both) is helping. The CBD oil is a five day supply so I will see how I do after it runs out. I think the majority of my improvement is the nucynta, but I will let you know after my CBD oil runs out. I bought it at a place staffed with both an RN and an MD, and I met with the MD for 40 minutes (!) and he did a good job of answering my (many) questions. So I do feel fairly comfortable taking it, and I'm not concerned about interactions with my other medications. But, I'm not yet sure it is effective.

April