Health Organization for Pudendal Education

Larry and I have been PM'ing and Larry is generously allowing us to use his words and story on the website. Thanks Larry, I will try to get it posted soon -- hopefully this weekend.

Mo, I like your idea of using more quotes from PN patients. There are plenty of places we could put them on the website.

Violet

Larry, your story and quote are now on the website at these links:

http://www.pudendalhope.org/node/2

http://www.pudendalhope.org/node/87

Thanks again.

Violet

Beautiful! Love the story, Larry's quote, and the photo. Thank you Larry and Violet.

Thank you so much for sharing this story. After just receiving a small taste of improvement with a low dose Ketamine infusion your story brings hope to me that with tenacity and repeated treatments of the Ketamine it will bring me a pain free or near pain free life.

Larry's quote on the home page is so inspiring and encouraging! Thank you Violet and Larry!

It is so great to hear Larry's story . Larry, you are one very brave and humble man. Thank you for coming back to this forum and giving HOPE to others.
Like you, it has taken me 4 years post surgery (France) to get to a tolerable pain level. Life will go on for us. You're such an inspiration and it's so good to know that you didn't ever give up hope that things would change for the better. Our lives have changed in so many ways as a result of this horrendous condition. Some good things are bourne out of bad. We have had our lives turned upside down and for some people their lives have been torn apart. You didn't give up.

I wish you the very best in life.

Catherine (Australia)

Hello Catherine: It's wonderful that you are doing well after 4-years post-op. Your story, like mine, is hopefully just enough to give others hope that they can get better over time. You are so right in that our lives have changed in so many ways as a result of this horrendous condition. The feeling of empathy for all those that are now in the midst of this disease really is enough to break ones heart. When people write on this board - describing their suffering - I can almost feel it myself. I wonder world-wide how many people suffer? Think of the hope that could be given to others if more who are cured or have made tremendous progress would return to this board to help others.

Thanks Violet and Larry,
Your story is so generously written Larry, and I know it has and will continue be helpful to so many of us. I am glad that it has been 'saved'( thanks Violet) as I'm sure people will read it again and again.