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Re: Letter to the Medical Profession

Posted: Sun Nov 14, 2010 2:24 am
by Violet M
Pilates? :shock: I don't think so!

Re: Letter to the Medical Profession

Posted: Mon Dec 20, 2010 9:34 pm
by mom
I wish this letter made refersnce to chronic genital itch as an effect or symptom of PN. That is what my daughter suffers from as well as "tummy pain"
I have talked to others whose symptoms and struggles began with genital itch.
This letter only addresses severe pain. So if I took this to my daughters Doctors, it would actually support there theory that she needs to see a phsycologist. I know her itch is medical, and I am 99.9% sure it is from PN due to a tear in the labia from a swimsuit at age 4, as well as SEVERE constipation.

Re: Letter to the Medical Profession

Posted: Tue Dec 21, 2010 12:04 am
by Violet M
Thank you for your suggestion, Mom. During my vacation I am planning to take all of the suggestions given and draft some possible revisions to the letter to be presented to our board for review.