catherine a wrote: Hopefully more and more NZ specialists will attend the seminars held in Sydney each year.
yes good NZ specialists attend these seminars, but its up to them what they do from the info they gain.
Example, my specialist (Gillett) attended this year and still has no clue what to do or look for.
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
Have you made any progress kia kaha ? I hope you are persevering and getting some answers ... maybe I will put my Wayne Gillett letter together in the school holidays.
J
PNE from cycling. Surgery with Prof Vancaillie, Sydney Australia 2008.
Very much improved
bindy15 wrote:Have you made any progress kia kaha ? I hope you are persevering and getting some answers ... maybe I will put my Wayne Gillett letter together in the school holidays.
J
please write to Gillett
I'm not getting anywhere.
last appointment with Gillett 2 months ago, and he has done nothing he promised since. The ACC claim is still waiting for his input too.
Incredibly slack and disappointing.
I doubt the claim will go through so I can get the botox from East.
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
Chronic Pain pudendal area for 3 years, after a hard jolt to right side.
18 months later discovered sprained/fused sacro-illiac injury. Told to 'live with it' then saw this forum October 2011 = symptoms matched. Attempting to get this investigated in the face of lack of skilled docs in New Zealand.
Been told I have IC Dec 2011
FINALLY - 3T MRI in Christchurch 5th May 2012 - Pudendal nerve block, unguided 8th June 2012 - still waiting on results and progress from these.
Clarification of Dr. Vancaillie's clinics. All patients need to have a referral from another doctor or if residing outside of NSW a referral from another specialist.
Female patients only - Royal Hospital for Women, Randwick NSW. (Public Hospital)
the contact number 02 9382 6248, or 02 9382 6249
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
