Health Organization for Pudendal Education

Dr Struan Coleman at HSS. If you can go see him I would highly recommend it.

Thank you, I am seriously considering it. I will start calling.

Griff522 wrote:Dr Struan Coleman at HSS. If you can go see him I would highly recommend it.

Thank you so much! I am about to fax records to his office now. He'll look at them tomorrow!

You're welcome! You will like him a lot. He GETS it!

Antonia,
Gioog luck and hope this doctor can and will help you!
Janet

Antonia wrote: He said that there was too much pain in my pelvis to be coming from a labral tear alone

Antonia,

I got this response from various doctors too. With chronic pain our nerves become sensitized and do feel more pain than other people do. This is explained well in the link provided in another thread: http://www.pudendalhope.info/forum/view ... =25&t=5679

I hope your consult with Dr. Coleman goes well. Let us know!

I thought that link was very interesting. Unfortunately for me, this reaction started with a medication reaction which threw me into this state. Last time it happened I had no pelvic pain or hip injury but was like this for 9 months. My PT says she sees it frequently in patients who've gone off of any meds like neurontin, valium, even amitriptyline. My doctor said, and it seems clear from the research I've done, that my nervous system is trying to up-regulate still from being down-regulated by the medication for a few months and that it's really hard to stop with a pain trigger being there. We're working on getting it calmed down naturally. This can obviously happen from chronic pain alone, as the link states, so I'm unfortunately dealing with both issues simultaneously and can't take any medications.

I worry that Dr. Coleman will see the extent of the muscle involvement and sensitivity and not want to treat me. The extent of the pain response. Has anyone else here successfully down-regulated this response?

Me!!!! But it takes time.

Antonia wrote:

I worry that Dr. Coleman will see the extent of the muscle involvement and sensitivity and not want to treat me.

Here's a tip: If you talk to Dr. Coleman, focus on your hip ("Doc, my hip is killing me! Please help!"). Do NOT dwell on your other muscular/pelvic floor/PN issues. In my consultations with hip surgeons I rarely mentioned my other issues. It just confuses them. Orthopaedic doctors are carpenters, not muscle experts, particularly not the pelvic floor muscles!

My experience with Dr Coleman is that he will only focus on your hip -- he won't make any promises about your pelvic pain going away post surgery. And he will only operate if he feels you are a candidate for surgery. Since he deals with so many pelvic pain patients he has heard it all! You can't get an appointment with him until he sees your MRI.