Surgery in Houston

[GregT]

Ali's post above is simply another opportunity to combine my last name and my screen name so as to play around with my identity.

Violet, I do believe this is strike 3 for Ali.

Also, Ali learned from my PT (we went to the same PT) after he asked her if I limped when I walked that I did limp. So, when he states above to me "thanks for telling me that you limp", all he's really doing is now for the 5th time, trying to link the fact that I limp with my having my ligaments cut. Note that he does not mention "I'm sorry that I tried to act as though you limped because of the TG surgery", or "I'm sorry for trying to trick and scare others away from the trad'l TG surgery by giving the indication that you limped only because you had your ligaments cut. I'm sorry that I continue not to at least mention the fact that it is because you were born with muscular dystrophy."

But, let's all forgive Ali because he ends his posts with a nice and warm well wish. Let's omit the fact that he habitually lies.

For example, he stated in an earlier post that "I'm glad that I no longer participate on tipna", but now he reveals that it is because he has, indeed, been banned from tipna because of basically lying to the people of this forum and on the tipna forum, by using personal information of mine over and over on a forum where he knew that I didn't participate. Imagine the disgust when I came here a month or so ago only to see my full name in print and only days later to see my personal email address.

For those of you who are crying about how this thread has become a fight thread, you might want to try and put yourself into my position. When people have been nice and agreeable to Ali, he's nice back. But, when they disagree with him, notice the way he acts. Now imagine that your personal information has been included in many posts on a public forum only for the purpose of intimidation, only showing reckless care for others' personal information. Karyn, this is what I'd call "taunting" someone. Now, imagine that this same person is feeding you all medical information, information which many of you are all gulping down much like those with Jim Jones did.

Now again, Violet, why do you think that Ali posted my surgical report above? Was it because he believes there is valuable information in it? Of course not. He's doing it only to mention my full last name as many times as possible. Please do us all a favor and put this boy in time-out.

Greg

[Charlie]

I am very grateful to both forums and like most people use both. I don't have an issue with either forum.

I think some disagreement on a forum is healthy and it certainly does not bother me. PNE is a terrible condition and we should be supportive to people once they have chosen a surgeon.

In regard to the ligaments there is no evidence which can prove causation between severing the ligaments and pelvic instability.

What I do find slightly perplexing is that the people who warn of the supposed dangers of cutting the ligaments then insist you should see Hibner. Well Hibner still cuts the ligaments. In fact he severs one and does not repair it.

There seems to be this assumption that the ST ligament repair is a proven technique. It is not. Ligament repair is not simple and certainly does not have a 100% success rate.

Repairing torn ligaments have posed a significant challenge for physicians in the past. Previous repairs, including grafting tissue, or placing artificial prostheses to replace ligaments, were relatively unsuccessful. Often patients would have to undergo multiple surgeries to maintain a repair, or would have to have prostheses replaced.

http://www.wisegeek.com/how-do-doctors- ... aments.htm

I am sure Hibner is a great Dr and everyone I know that has seen him rates him highly. However I think we need to reserve judgement on the success of his ligament repair.

[HerMajesty]

Hi Charlie,
Great to see you here as always...I assume that you saw at the end of the controversial locked ligament thread, that Dr's Antolak and Conway are repairing the ligaments with a methodology different from Dr. Hibner's? It is intriguing in that it does not involve grafting. It's always nice to have options.

[GregT]

Ali's post above is simply another opportunity to combine my last name and my screen name so as to play around with my identity.

Violet, I do believe this is strike 3 for Ali.

Also, Ali learned from my PT (we went to the same PT) after he asked her if I limped when I walked that I did limp. So, when he states above to me "thanks for telling me that you limp", all he's really doing is now for the 5th time, trying to link the fact that I limp with my having my ligaments cut. Note that he does not mention "I'm sorry that I tried to act as though you limped because of the TG surgery", or "I'm sorry for trying to trick and scare others away from the trad'l TG surgery by giving the indication that you limped only because you had your ligaments cut. I'm sorry that I continue not to at least mention the fact that it is because you were born with muscular dystrophy."

But, let's all forgive Ali because he ends his posts with a nice and warm well wish. Let's omit the fact that he habitually lies.

For example, he stated in an earlier post that "I'm glad that I no longer participate on tipna", but now he reveals that it is because he has, indeed, been banned from tipna because of basically lying to the people of this forum and on the tipna forum, by using personal information of mine over and over on a forum where he knew that I didn't participate. Imagine the disgust when I came here a month or so ago only to see my full name in print and only days later to see my personal email address.

For those of you who are crying about how this thread has become a fight thread, you might want to try and put yourself into my position. When people have been nice and agreeable to Ali, he's nice back. But, when they disagree with him, notice the way he acts. Now imagine that your personal information has been included in many posts on a public forum only for the purpose of intimidation, only showing reckless care for others' personal information. Karyn, this is what I'd call "taunting" someone. Now, imagine that this same person is feeding you all medical information, information which many of you are all gulping down much like those with Jim Jones did.

Now again, Violet, why do you think that Ali posted my surgical report above? Was it because he believes there is valuable information in it? Of course not. He's doing it only to mention my full last name as many times as possible. Please do us all a favor and put this boy in time-out.

Greg

And the enabling continues...............

[Charlie]

Hi Charlie,
Great to see you here as always...I assume that you saw at the end of the controversial locked ligament thread, that Dr's Antolak and Conway are repairing the ligaments with a methodology different from Dr. Hibner's? It is intriguing in that it does not involve grafting. It's always nice to have options.

I did not notice this before your post. I agree it is good to have options. I just went back and read Karyns post regarding that technique. I have re posted it below

I wanted to share something I learned yesterday about Dr. Antolaks & Dr. Conways TG approach in regards to the ST ligaments. They make a verticle, center slice to gain access. Dr. Conway informed me that by the time they're ready to sew you back up, the ligaments are already rejoining themselves. For extra insurance, they do stitch the incision, using dissolvable stitches. Is this right? Is this wrong? I don't know. I'm merely passing on information that was presented to me. Something else to ponder in the world of ligaments!

To be honest I don't really understand how they are doing this. If the nerve is compressed by the ligaments how is it possible to free them without cutting them completely and just making a small slice in the ligaments? I am not saying they are doing anything wrong I just don't understand how they are doing it.

What I will say if you do have an entrapment at the ligament you have to do something to the ligaments to relieve the compression on the nerve.

Lets presume that severing the ligaments does cause instability. You still have the problem of these completely new, unproven techniques to repair the ST ligament. Hibner's statement on his own website does not suggest he is certain about this ligament repair.

[Celeste]

I wanted to share something I learned yesterday about Dr. Antolaks & Dr. Conways TG approach in regards to the ST ligaments. They make a verticle, center slice to gain access. Dr. Conway informed me that by the time they're ready to sew you back up, the ligaments are already rejoining themselves. For extra insurance, they do stitch the incision, using dissolvable stitches. Is this right? Is this wrong? I don't know. I'm merely passing on information that was presented to me. Something else to ponder in the world of ligaments!

To be honest I don't really understand how they are doing this. If the nerve is compressed by the ligaments how is it possible to free them without cutting them completely and just making a small slice in the ligaments? I am not saying they are doing anything wrong I just don't understand how they are doing it.

What I will say if you do have an entrapment at the ligament you have to do something to the ligaments to relieve the compression on the nerve.

I think what you're saying here, Charlie, is that by doing the decompression through the ST ligament in order to preserve it entirely, the nerve is decompressed from any tethering or fibrotic/scar tissue that may be around the nerve. But, if the compression was due to the mechanical action of one or both ligaments physically pressing down on them, they'll still remain. Correct? If transposition of the nerve is still done, then you're hoping that this plus the surgical decompressing was enough.

[Charlie]

I think what you're saying here, Charlie, is that by doing the decompression through the ST ligament in order to preserve it entirely, the nerve is decompressed from any tethering or fibrotic/scar tissue that may be around the nerve. But, if the compression was due to the mechanical action of one or both ligaments physically pressing down on them, they'll still remain. Correct?

Yes if the compression is caused by the ligaments pressing down on the nerve then I don't see how the pressure can be alleviated if the ligaments are not cut.

[GregT]

Violet or any other moderator who'll listen,

Please delete the part of Ali's post which lists my surgical report (a page or so ago). As I mentioned in my PM to you, this is simply another way of Ali attempting to intimidate me by posting my personal information. As you stated, yes, my surgical report is available for people to read, but nowhere is it printed out as it is here. It never was intended to be displayed in public as it is here.

It has now been up about 16 hours after I last asked you about it. Obviously you aren't going to do anything ever about Ali's behavior, so would you please go and clean up behind him again and delete this post of his?

Thanks.

Greg (notice no last name used??????)

[Violet M]

Greg, I did not realize anyone was playing around with your identity. You have signed your full name in the "welcome newbies" section on tipna where you are asking for donations. http://www.tipna.org/forum/viewtopic.php?f=15&t=411

You have posted your surgery report publicly on your website with your name on it. I fail to see how Ali has disclosed your identity but rather he was explaining that you disclosed your identity yourself. Nevertheless, if you do not wish to have your surgery report on this forum I will remove it.

Violet

[Celeste]

Honestly, the interaction between Greg and Ali could have taken place in a PM. Greg's surgical report has nothing to do with the thread's inital topic, surgery in Houston, so it's not really germane to the discussion. Obviously Ali made his point that he could find this information online, and obviously Greg is upset by it remaining. Is there any way to remove it so we can all just go forward?