Health Organization for Pudendal Education

Seth,

The only time I experience pain is primarily sitting or standing in one spot(not moving). Don't really experience pain moving. So, I can exercise, play sports, hike etc. without much pain. Of course when I have been sitting all day, muscles in pelvis feel soar so am much worse at the end of the day. Neither Dr. Andrews nor Stephanie nor other PTs could generate my symptoms upon palpitation.

Ezer/Violet,

I had ESWT with Dr. Andrews. He himself believes in the mindbody connection. ESWT did not help me at all. Dr. Andrews told me that he also had been going through stress prior to onset of his symptoms. As for myself, I had a lot of self imposed (non-sense) stress right before onset of my symptoms. And that is the hallmark of TMSers. Yes, a lot of individuals go through horrendous stressful situations but don't develop PN. However, our personalities create excess stress to the point of overload like Ezer said. Now I'm sure there are physical dispositions that make us prone to pelvic pain. It's probably a combination of many many things. The perfet storm. But, the root cause is the psychological component. That's why it's hard to fix with a scalple.

Ezer,

I don't use any pain medications because none of them help. Including opiates. Only thing that helps is alcohol!....LOL

ffseth,
Sarno is completely excessive. You just have to have the right mindset. Have PT as long as you realize that it is not a cure, it is simply pain management. If you feel that some sort of physical manipulation will heal you then it is a problem.

sage,
Thanks for the support. Most people I communicated with on this forum had some form of trauma/high stress situation before PN set in (minus Violet). In some of the cases where the person was claiming to be happy and fulfilled prior to PN, I discovered later on that it was not exactly so clear cut.

Indeed Dr. K.Andrews is a big time believer:
http://www.pudendalhope.info/forum/view ... ert#p29058

Quite intriguing.

Thanks ezer. I'm starting Dr. David Hanscoms book"back in control" today. He is a neurosurgeon here in Seattle who requires his patients to complete his mind body program prior to surgery

I read his book and it was a good read. He has also videos on youtube. He suffered himself from a mindbody syndrome and recovered.

How can we undo central sensitization? I have been told I have it.

It seems that different methods work for different people and sometimes it's a matter of trial and error to find out what works for you. Just to list a few things I've heard on this forum -- the mindbody approach, ketamine infusions, neuromodulation, pain pump, electroshock wave therapy, and for me it was PNE surgery. I'm sure more could be added to the list.

Violet

cpps-admin wrote:I am obtaining the full paper "Anatomic Variations Of Pudendal Nerve Within Pelvis And Pudendal Canal: Clinical Applications" to see if I can shed some light on the abstract's comments.

I now have the University of Texas paper, a study of 13 normal female cadavers (no pelvic pain history as far as we know). The pudendal nerve was found to be routinely "entrapped", to the point where the authors suggest that there is no such thing as pudendal nerve entrapment, and that attachments ("entrapments") are normal. This is an extract from the commentary section at the end:

An interesting finding of this study was the fixation of the pudendal nerve (PN) on the dorsal surface of the sacrospinous ligament (SSL). These connective tissue attachments were found not only on the dorsal surface of the SSL-ischial spine junction but within the pudendal canal. Whereas previous authors have noted that the PN is surrounded by a connective tissue sheath in the pudendal canal,(4,9) we found no specific descriptions or assessments of the mobility or connective tissue interactions of the PN on the dorsal surface of the SSL. This finding has potential implications in the surgical treatment of pudendal neuralgia, and it may be misleading to attribute pudendal neuralgia to nerve entrapment. Thus, procedures seeking to decompress the PN may not address the true etiology. In fact, these procedures may potentially result in significant complications, given the complexity of surrounding nerve and vascular anatomy

This excellent study throws doubt on the whole field of PN surgery. A must read for anyone considering this surgery, IMO.

I will put the whole study up at my member's forum. Meanwhile, the abstract is here.

Like I said near the beginning of this thread, I have never understood entrapments to necessarily mean attachments to the ligaments. That's not how Pr. Robert described them in his early publication on PNE. So I don't see what this article proves.

Violet

This article proves that there is no such thing as entrapment for the vast vast majority! It is a bogus surgery and with the lowest possible success rates. The European doctors came to this conclusion a long time ago. The doctors who do the surgery tell indiviuals that they are entrapped and then these same individuals become miraculously unentrapped years later? It is unexplained pain. Just like many other medical symdromes. BTW, where is Ezer? Hope he wasn't kicked off this board.