Health Organization for Pudendal Education

Summer wrote: ↑Wed Oct 25, 2023 8:40 pm Hello violette,

I have read and understood your message !

Yes, in my opinion it's very likely that your pudendal nerve was pinched, irritated, by a cyst or a herniated disc in the sacro-lumbar vertebrae, and this happens very often!

Very often it is in the sacro-lumbar vertebrae that there is a pinching (compression) of the pudendal nerve and also in the pelvic/genital/genital area.

Did you have a herniated disc or cyst in the dorsal spine / sacro-lumbar region ?

Is Dr Frédéric Potaux the orthopaedic surgeon and traumatologist in Nantes you're talking about? Yes, there are Pelvic and Pudendal nerve specialists in Nantes !

In France (as in other countries) it's not the lack of neurosurgeons or orthopaedic surgeons that's the problem, but the lack of knowledge about this Pgad syndrome !

The problem is that there are still many neurosurgeons and urologists who don't know that sometimes a cyst or herniated disc affecting the Pudendal nerve can trigger permanent genital arousal !
So it's up to us (the patient) to explain this Pgad syndrome to the doctors! That's what I did right from the start with the various doctors and I wasn't too afraid to tell them about my permanent genital arousal... Anyway, I had no choice !

Technically, it's no problem for a neurosurgeon to free a nerve and remove a herniated or prolapsed disc or Tarlov cyst.

But the good news is that Pgad syndrome is beginning to be better known among doctors and surgeons or urologists. And there's also a lot of information on the internet and social networks.

I hope that the cause of my PGAD is not a neurological disease = polyneuropathy!

I had a pelvic MRI in October 2021 and no Tarlov cyst.
Pelvic/genital varicose veins, I don't know?
I have a small L5-S1 protusion and L4-L5 L5-S1 osteoarthritis. But I'm not sure if that's the cause of my PGAD?
The neurosurgeon, Gaelle Mouton Paradot, thinks it's neuropathy.

I am very happy that you are cured of PGAD.

If I have any new names of neurosurgeons or urologists specialising in the dorsal spine, pelvic and pudendal nerves and who are familiar with Pgad, I will send you the information (their contact details).

See you soon

PS: Thank you and I agree => admin@pudendalhope.org

Balenul wrote: ↑Mon Nov 13, 2023 4:36 pm Imo the pudendal nerve can t be compressed there 100 % what you talk about is a pelvic roots compression and not a pudendal entrapment.I think Violet and others can confirm this.

Summer wrote: ↑Thu Nov 16, 2023 3:52 pm Hello Violette,

I totally agree with the article about the great pudendal nerve! In fact, it's very easy to find photos of the pudendal nerve and the path it takes! This pudendal nerve also has s 3 branches. The Dorsal nerve of the clitoris or penis, the Anal nerve and the Perineal nerve.
Here's a quick summary of the course of this famous pudendal nerve ==>> The pudendal nerve forms on each side from the roots S1 to S4 (especially S2-3), which then leave the spinal cord, then descends into the perineum near the ischium (buttock bone), before ending up in the perineum in 3 branches: dorsal, perineal and rectal And the dorsal nerve of the clitoris.

Sometimes the pudendal nerve is compressed in the ischio-rectal fossa or in the sacrospinous ligament.
Sometimes, when the large sacrospinous ligament is inflamed, it can irritate or compress the pudendal nerve, resulting in pain in the buttock or other areas.

In France, there are women who, because of one or more Tarlov cysts irritating or compressing part of the pudendal nerve, have a Pgad. The same applies to the dorsal nerve of the clitoris!
This is why the best solution is surgery to remove the cyst(s).

Thank you, violette! I hope the treatment will give me some relief

I still have a sore spot in the middle of my left buttock where there's the piriformis muscle and the big sacrospinous ligaments and which is very, very close to the pudendal nerve !

I'm going to discuss this later with neurologist/neurosurgeon gaelle mouton Paradot.
My young neurologist in my town is still on sick leave and maybe she should come back at the end of December and ?

I'm going to ask my family doctor for a prescription to redo an MRI of the pelvis and pelvic area.

To check if there is a cyst or not and mainly to check if there is inflammation at the level of the piriformis muscle and the large sacro-epineous ligaments because I constantly have this muscular sensation (a point) in the left buttock !....

Violette, Yes I hope you're well and that your spirits are high !

Actually it's very complicated neurological problems!

See you soon

Lovepeps wrote: ↑Fri Oct 27, 2023 9:55 am I read something and I don't know if it is true but I can't get it out of my head. It said that for the first 6 months your PGAD can go up and down. that you can also have days off. but after 6 months it will continue and you will not get any rest periods.

is this correct or is it nonsense?