Health Organization for Pudendal Education

Hello,
I have developed pudendal neuralgia 8 months ago. I also have pins and needles all over my body. Doctors so far say it cannot be medication (lyrica and amitryptiline) but more likely a form of central nervous system sensitization. Has anyone experienced somthing similar?

Yes, but mine has not spread as much as your's. Mine has stayed from the waist down. I have TMJ but that is from clenching from the pain in my legs.

I am getting trigeminal neuralgia on and off. It is a right nuisance.

You might want to talk with a pharmacist about the possiblity of the Elavil causing some of you symptoms. If you do a Google search on the side effects of Elavil you will see it can cause additional peripheral neuropathies. I can't take Elavil because it gives me a rapid heart rate. It wouldn't hurt investigating the possibility that the drugs are causing some of the new problems. They may not be but it never hurts to do your own research.

nyt wrote:It wouldn't hurt investigating the possibility that the drugs are causing some of the new problems. They may not be but it never hurts to do your own research.

I think this is a VERY important statement. Anyone and everyone on meds should be thoroughly reading their fact sheets when picking them up from the pharmacy. I recently had a conversation with a close friend who discovered that some of her meds were cancelling out the effects of other meds. I've noticed that some docs tend to down play the side effects. Please take it upon yourself to be viligeant about this!
Warmest of regards,
Karyn

nyt wrote:You might want to talk with a pharmacist about the possiblity of the Elavil causing some of you symptoms. If you do a Google search on the side effects of Elavil you will see it can cause additional peripheral neuropathies. I can't take Elavil because it gives me a rapid heart rate. It wouldn't hurt investigating the possibility that the drugs are causing some of the new problems. They may not be but it never hurts to do your own research.

Wow... I NEVER thought about this with Elavil. I wonder if it has been doing more harm than good?

Hmmmmm......

If you decide you want to stop taking the Elavil you need to wean off of this drug, don't just stop taking it. Remember there are lots of other drugs out there you can try if you think either one of these might be causing some new symptoms. Elavil is an oldie but goodie that probably has the most research completed on its mechanisms and side effects. If you talk with the dr. again bring information from the pharmacist to back up your concerns. Good luck.

I had to stop taking amitryptiline due to weird nervous system side effects--my hands would tingle, legs would go numb easily, and I also had an uncomfortably increased heart rate.

I'm not saying that's your problem, but it is important to look at all the variables.

Lauren

I have experienced this as well. I was informed of complex regional pain syndrome and my pain management doctor is hoping once he gets my guided CT pudendal nerve block in some of it may calm down. Has anyone else been experienced CRPS? My PN started 6/2010 from a specific incident. I have navigated in and out of specialists in the last 9 months -- GYN, GI, Colon/Rectal, Uro-Gyn, Derm, Rheum, Inf Disease, Internists, Vascular, Physical Rehab. It has been very frustrating to deal with pain that cannot be seen on MRIs. Lots of doctors checking out their areas with much concern but just so little seems to be known on this subject. It is aweful to have medications prescribed that make you loose your memory but you still feel the pain. I am going to try Savella. Has anyone had success or know of this drug?

JRS wrote: I am going to try Savella. Has anyone had success or know of this drug?

I think it's a supplement, rather than a prescription drug. You can use the Search function here to find others' experiences with it.