Health Organization for Pudendal Education

Had an EMG done and that was normal, it only showed that the sciatic nerve is not damaged and it is not radiating from my back.

Neurologist is not sure but it might be either the inferior cluneal nerve or the pudendal nerve, in any case, some nerve is angry.

He wants a CT scan of the pelvic area and a bone scan to role out sacroliitis.

Is a CT scan even useful for the pelvic area for these kinds issues?

And if it's the cluneal nerve, Wich is more in line with my symptoms even treatable, the literature about cluneal nerve entrapment seems even more limited than the ones for pudendal neuralgia.

Thanks.

Hi Barre,

Can't say for sure why they would need a CT scan but that's something I would ask your doctor since you don't want to have any more radiation than necessary. There may be a good reason for why it has to be CT instead of MRI or an x-ray but they should explain it to you. The Mayo Clinic website says that an x-ray is used to diagnose sacroiliitis. That would be less radiation than a CT scan.
https://www.mayoclinic.org/diseases-con ... c-20350751

If you live in the US you could contact the doctors who did research on the inferior cluneal nerve in Colorado. https://pubmed.ncbi.nlm.nih.gov/34807870/
If you go to that link and click on expand it tells you where they are located. You may be able to find an interventional radiologist locally who can do a nerve block to that nerve.

If you can't find someone locally who treats the inferior cluneal nerve, you could also try Dr. Williams who used to work with Lee Dellon (who is now retired.)

If you live in Europe, I'm guessing Dr. Aszmann in Austria likely treats inferior cluneal nerve entrapments. There are some doctors in Belgium who treat the inferior cluneal nerve. Here is an article they wrote. https://pubmed.ncbi.nlm.nih.gov/31828369/ Click on expand to see where they are located.

Hopefully some of our other forum members can give you some leads on doctors.

Violet