Health Organization for Pudendal Education

Have been suffering with misdiagnosis after misdoagnosis for for more than 20 years. About 4 years ago, after many new tests, I received a confirmed diagnosis of bi-lateral pudendal nerve entrapment. Since then, I have spent more than 50K on every treatment available, tried every medication available, spent years in pelvic physical therapy, and have flown across the country to meet with PN specialists and try new treatments; trying to find any relief from the pain. Some things have helped a little but nothing has provided enough relief for me to even sit in a chair for 10 minutes. Fast forward to two months ago when a friend told me about a chiropractor who specializes in chronic pain relief. I thought “why not?!?!” One of the first things this chiropractor did was put me on a machine that assesses the pronation of your feet and it turns out I have SEVERE over pronation. She ordered me custom orthodics and two months later, I am feeling better than I have in over a decade. Turns out overpronation can cause pressure to be put on your hips and pelvic floor which can then trap and/or hurt your PN. I started a new job and didnt wear my custom orthodics for a week and my PN pain gradually started to increase. I have learned my lesson. I live in my orthodics, even when I am at home. I am not completely healed but as long as I wear my orthodics, I can feel myself getting better each week and I am able to do more physical activities than I have been able to do in over a decade. I am also not living with heating pads and ice packs constantly attached to my private parts anymore. I am still baffled that in 20 years, not one doctor (orthopedics included) recommended checking my feet. If you suffer from PN, do yourself a favor and get your feet checked.

Interesting. I also have a pronated foot. Maybe that's what's causing all this pain in my PN. I happen to be 36 years old and I've had a pronated foot all my life. So, I find it hard to believe that this is the real cause of my problem.

I don't speak English. I used Google Translator

I wear custom orthotics, and it doesn’t help my pudendal pain at all

Therapies like acupuncture and chiropractic care have been known to provide relief for some individuals dealing with pudendal nerve issues.
Trying out these therapies, if you're comfortable, may bring about some positive changes to your condition.

In my personal health journey, the guidance of physiotherapy through personalized assessments and integrated care has truly made a significant difference for me. Trying these options might make a positive difference for you too. The skillful adjustment of care for long-lasting results has genuinely improved my well-being, allowing me to enjoy better days and feel better overall.

Thanks for posting! I was wondering where I could see your chiropractor. I live on the Rhode Island coast.