Potential Cause of Symptoms??
Posted: Wed Oct 25, 2023 9:17 pm
Hello all!
New to this forum - I'm hoping someone could provide a guess as to where symptoms are coming from, as doctors have given me frustratingly little info or help. I'm a 28 y.o. male, and almost exactly 2 years ago, I started having a rhythmic "buzzing" sensation in my penis immediately following orgasm during masturbation. It's like a light switch was thrown on - I never had any pudendal symptoms before that day. Nothing was super unusual about the orgasm, except I remember I was clenching my glutes really hard. Also around that time, I was aggressively stretching my hamstrings too. The buzzing wasn't painful, but annoying as hell and would come and go every few seconds consistently. This lasted a couple of weeks, and since then the constant buzzing has gone away, but I still have intermittent symptoms. I'll have stretches of time (sometimes weeks and up to a month) where I have NO symptoms, but then my symptoms will always return. Recently, my symptoms have been flared for more than a month and are extremely uncomfortable, which has me increasingly worried as I have never had a flare last this long and been this intense.
Symptoms:
- Intermittent electric like buzzing in penis - I would describe it as feeling like hitting your funny bone, but less intense. I feel it when my underwear brushes against the glans, and the left side shaft. It feels like it travels "through" my penis if that makes sense.
- Lower back pain that started on the same day as the buzzing, mostly on the left side right above the buttocks. It should be noted that I had a traumatic back injury skiing 1.5 years prior to this in my lower back area, but had no nerve problems after the accident.
- A similar buzzing feeling in both of my feet, on the sole of the foot mostly.
- Anus sometimes feels "hot" for a few seconds.
- Raw skin feeling/pins & needles around the pereneium/groin area.
- PT's say I am extremely tight
- I have no numbness, loss of erection, loss of sexual function, loss of bowel control, acute pain, feeling of needing to go to the bathroom constantly, or feeling like a "ball" is inside me.
Things that make it worse:
-Excessive sitting. Sitting on hard surfaces seems to be worse, but sitting on any surface for a long period of time is bad in general
- Orgasm seems to make it worse when flared.
- Any activity that involves the glutes - skiing, hiking, squatting, excessive sitting, lots of stairs.
-Stretching hamstrings
-Shoveling snow
Things I have tried:
- Activity modification: I try to stand mostly at work now instead of sit, and have cut out any sort of activity that involved the glutes as mentioned above. Reducing sitting seems to help the most.
- Not masturbating/orgasm for a month or so - this didn't do anything.
- PT for both my lower back and pelvic floor - This didn't seem to do anything.
- Medications - amitriptyline, gabapentin, muscle relaxers, duloxetine, rectal suppository. These seem to take a little of the edge off the symptoms but doesn't help a ton.
- Sacral nerve block at S2-S3 - this offered no relief.
-Pudendal nerve block - I've had this done twice - the first time I don't think they did it correctly as nothing was numbed after it, but the second one they got more of the nerve and it seemed to help, but didn't last long.
- MRI of both my lower back and pelvis. Pelvis was unremarkable, lower back revealed some minimal disk bulge at L4-L5 & L5-S1 and some facet atrophy, but minimal. None of my doctors think these bulges contribute to my symptoms.
-Acupuncture - this offered no relief.
Does anyone have any guess where these symptoms could be coming from or had a similar experience?? Doctors and PT's haven't been able to identify any cause, and I've seen multiple with no success. They say it's in my head, pass me off to someone else, or don't take me seriously as I'm a big guy who looks fine outwardly. I'm getting increasingly frustrated and depressed at the lack of help and progress, and is starting to affect my job and relationships. Does this sounds like symptoms of PNE or pudendal neuralgia? Anyone have any recommendations of a specific doctor to talk to about this? Thanks!!
New to this forum - I'm hoping someone could provide a guess as to where symptoms are coming from, as doctors have given me frustratingly little info or help. I'm a 28 y.o. male, and almost exactly 2 years ago, I started having a rhythmic "buzzing" sensation in my penis immediately following orgasm during masturbation. It's like a light switch was thrown on - I never had any pudendal symptoms before that day. Nothing was super unusual about the orgasm, except I remember I was clenching my glutes really hard. Also around that time, I was aggressively stretching my hamstrings too. The buzzing wasn't painful, but annoying as hell and would come and go every few seconds consistently. This lasted a couple of weeks, and since then the constant buzzing has gone away, but I still have intermittent symptoms. I'll have stretches of time (sometimes weeks and up to a month) where I have NO symptoms, but then my symptoms will always return. Recently, my symptoms have been flared for more than a month and are extremely uncomfortable, which has me increasingly worried as I have never had a flare last this long and been this intense.
Symptoms:
- Intermittent electric like buzzing in penis - I would describe it as feeling like hitting your funny bone, but less intense. I feel it when my underwear brushes against the glans, and the left side shaft. It feels like it travels "through" my penis if that makes sense.
- Lower back pain that started on the same day as the buzzing, mostly on the left side right above the buttocks. It should be noted that I had a traumatic back injury skiing 1.5 years prior to this in my lower back area, but had no nerve problems after the accident.
- A similar buzzing feeling in both of my feet, on the sole of the foot mostly.
- Anus sometimes feels "hot" for a few seconds.
- Raw skin feeling/pins & needles around the pereneium/groin area.
- PT's say I am extremely tight
- I have no numbness, loss of erection, loss of sexual function, loss of bowel control, acute pain, feeling of needing to go to the bathroom constantly, or feeling like a "ball" is inside me.
Things that make it worse:
-Excessive sitting. Sitting on hard surfaces seems to be worse, but sitting on any surface for a long period of time is bad in general
- Orgasm seems to make it worse when flared.
- Any activity that involves the glutes - skiing, hiking, squatting, excessive sitting, lots of stairs.
-Stretching hamstrings
-Shoveling snow
Things I have tried:
- Activity modification: I try to stand mostly at work now instead of sit, and have cut out any sort of activity that involved the glutes as mentioned above. Reducing sitting seems to help the most.
- Not masturbating/orgasm for a month or so - this didn't do anything.
- PT for both my lower back and pelvic floor - This didn't seem to do anything.
- Medications - amitriptyline, gabapentin, muscle relaxers, duloxetine, rectal suppository. These seem to take a little of the edge off the symptoms but doesn't help a ton.
- Sacral nerve block at S2-S3 - this offered no relief.
-Pudendal nerve block - I've had this done twice - the first time I don't think they did it correctly as nothing was numbed after it, but the second one they got more of the nerve and it seemed to help, but didn't last long.
- MRI of both my lower back and pelvis. Pelvis was unremarkable, lower back revealed some minimal disk bulge at L4-L5 & L5-S1 and some facet atrophy, but minimal. None of my doctors think these bulges contribute to my symptoms.
-Acupuncture - this offered no relief.
Does anyone have any guess where these symptoms could be coming from or had a similar experience?? Doctors and PT's haven't been able to identify any cause, and I've seen multiple with no success. They say it's in my head, pass me off to someone else, or don't take me seriously as I'm a big guy who looks fine outwardly. I'm getting increasingly frustrated and depressed at the lack of help and progress, and is starting to affect my job and relationships. Does this sounds like symptoms of PNE or pudendal neuralgia? Anyone have any recommendations of a specific doctor to talk to about this? Thanks!!