Health Organization for Pudendal Education

Hi friends,

I think that I have pudendal neuralgia and I would like a diagnosis and treatment, I'm just struggling with who. I live in Santa Ana, California. I have HMO insurance, requiring me to get a referral. I did get one from a doctor with who I discussed previously my symptoms (chronic pelvic pain, clitoral atrophy, vulvodynia, vaginismus, all for 4 years), the urologist did not even hear of this condition.

Please help me, what should I do?

Hi,

The only current pudendal neuralgia doctor we have listed in Southern Cal is Dr. Aaron Filler but I'm sure there are more. If you go to the list of PT's on our website, you could find one near you and call them to see if they could recommend a doctor in your area because they often work with the local doctors.

https://www.pudendalhope.info/usa-physical-therapists/

Hopefully some of our forum members will also be able to help you with some names.

Violet

Thank you very much, Violet, it is greatly appreciated. I will be sure to give this a look. I see that you have recovered 99% from PGAD, I am so happy for you. I have experienced symptoms of PGAD before, but it seems to come and go, for some reason. It feels relieving to know I’m not alone.

It can be pretty scary to have all of the symptoms you are describing, but hopefully you can find a provider who can help you. I would be interested to hear how things go for you.

Violet

Sorry to hear that! You might want to try asking your primary care doc for a referral to a specialist who's more familiar with pelvic pain. You could also do some research to find local docs who've dealt with pudendal neuralgia before. And don't forget to reach out to pain management clinics in Santa Ana to see if they can help.

Hi FindingHope,

I don't know of any doctors in your area. But, Karen Brandon is a physical therapist in So Cal who is very knowledgeable about pn. I think she is in the Kaiser HMO network.

April