Recommendations

[AL456]

34 yr old Male. I’ve posted previously about an injury I sustained. I landed on my buttocks/lower back after losing consciousness and was diagnosed with a coccyx fracture. From then (4 months ago) until now, I have had persistent numbness to the penis, scrotum, and buttock region. It significantly impairs my sexual function. The neurologist has diagnosed it as a probable pudendal nerve issue but can’t find where as MRI’s have not detected any nerve damage. He therefore can’t diagnose a compression. I’ve been advised to do further nerve testing interstate for the pudendal nerve (I’m not sure how helpful this would be), and besides that I have been engaging with a pelvic floor PT for weeks now with no change in symptoms. I am on a waiting list to see one of the only specialists in Australia who treat pudendal nerve issues however it’s a 7 month waiting list to see him. I have been told by doctors to “wait for the nerve to grow back as nerves take a long time to heal”. This isn’t really a firm diagnosis but a theory they have. My issue is that there may be a compression that has been undetected and based on symptoms it is a legitimate concern. If I were to seek opinions overseas, which doctors would you recommend for my particular situation? Doctors that have a proven record with diagnosing and treating this issue?

[Pain_Darren]

edit

[AL456]

Yeah he’s a 6 - 7 month waiting list! I’ve already had this for 4 months now. It just seems too long.
Can I request 3T MRI from any doctor? I’m finding it hard to find anywhere in Australia that does 3T.
Yeah I may have to consult overseas.
Are you in Australia also? Did you have a problem here as well?

[Pain_Darren]

I heard of a lady getting a MRI through prof Vancaillie at a clinic called WHRIA

[AL456]

I called them a few weeks ago and they put me onto the doctor with the 6 - 7 month waiting list. There’s a doctor in Melbourne who I believe does the injections etc.
Honestly Australia needs to get with it with this issue. People shouldn’t have to seek out this hard to find treatment and wait ridiculous waiting times.

[Pain_Darren]

I am not Australian
They should not be making you wait that long.
Consult a surgeon overseas such as Dr Renaud Bollens.
Do not let them dictate your health.
6-7 months is pathetic
Darren

[King]

….

[Pain_Darren]

That is very interesting.
Have you been operated on by Australian surgeon?
I wonder how long some people are taking for improvements, I've had weird sensations after surgery.
A searing spark sensation
Darren

[King]

….

[AL456]

Having a 3T MRI on Monday, hoping to get something show up. I can feel the burning either side of the coccyx. And the symptoms of numbness and dysfunction with no improvement in 4 months.
I’m on the waiting list for the Australian surgeon. 6 months though.
A lot of people are telling me to just get a consultation with Dr Bollens etc, but there’s mixed reviews.