Health Organization for Pudendal Education

Hi all,

When I was first diagnosed I spent a lot of time on this website. Thank you for creating it! It has been helpful to me.

I have cryoablation of the PN scheduled for tomorrow. My question is, how has recovery been for anyone else? Is it painful? Has it been successful for anyone else? I couldn't find any posts discussing this.

I have had PN for 5-6 years now and it continues to get worse and more entrenched. My first 2 sets nerve blocks gave some temporary relief. Since then I have had maybe 10 RFAs and sometimes they worked and the disorder went away for a while but for the last 2+ years they haven't done much so we agreed this is the next step. My PN affects the penis and scrotum but not the anus. I have heard incontinence is an issue.

I am almost resigned that this PN will never go away. What is scary is that it keeps getting worse and my world is becoming even smaller and more painful.

Ross

Ross,

I had cryoablation in 2016. Post-procedure I had a huge pain flare with the substantial increase in pain lasted for many weeks. Ultimately, the procedure was not successful for me. If you search this forum for the term "cryo" I think you will bring up several old posts as a few members have tried it. If memory serves me correctly, there hasn't been much success overall.

I hope the procedure brings you relief. Keep us posted.

Stephanies

I think the cryoablation actually helped. It may have stopped a lot of the pain. But its hard to tell as my PN was rapidly getting worse. Now it is just stable, but I can't really walk so not ideal

Ross,

I am happy your PN at least feels like it isn't worsening now. How long ago did you have the cryo done? Is the doctor able to explain why you are having trouble walking after the procedure? Keep us posted on your progress.

Stephanies