Health Organization for Pudendal Education

Hi SusiQ

Sorry you have so much discomfort. I can't tell from your description whether or not your problem is pudendal. Generally, with PN, people are not awakened by pain at night, and often wake pain free in the morning. The pain progresses through the day, particularly if one sits or bends or even carries something heavy.

I've spent the last 12 months not sitting...and yes, it impairs my social life. No movies, no restaurants. But I lie down on the sofa at friends' houses; people are pretty accomodating!

--Christi

Susyq,

You must get yourself a donut cushion which relieves pressure from your bottom when you sit. Have a look at the forum section called "Seating and Physical Lifestyle Accommodations" which will give you an idea of the kind of cushions which are useful for relieving sitting-down pain.

Good luck.

I'm so sorry to hear about your pain and that you had to go through having breast cancer. Did you have chemotherapy? Sometimes the chemo can cause neuropathy in nerves of the body that are no where near the cancer site. I had a friend that had nerve pain in her feet after going through chemo for breast cancer.

Emily B.

Hi Suzy,

You said you were having some discomfort even before your surgery for breast cancer. Was there anything else you can remember that might have started this -- like exercising or an accident/fall?

None of my gyns were able to diagnose me -- it was a pelvic floor physical therapist who knew about pudendal neuropathy who figured out the diagnosis so you may want to seek out one of the PT's on our list for an evaluation.

Take care,

Violet

so sorry you are in our boat.
the cushions from ic-network.com work very nicely... especially 3 inch firm.