hello from a lurker
Posted: Thu Jun 09, 2011 1:42 am
Hi everyone,
My name is Emily, daughter of B__, who has been suffering from PN or PNE for 2 years. Mom was a very youthful and active 58 when stricken in 2009. Her pain quickly reached a 9 in any position, lasting all day, robbing her of the ability to focus on simple things like reading or watching a movie. Fortunately the pain is absent while she sleeps. Mom was diagnosed by Dr. Gordon in Toronto (thanks to this site we found his name and figured out what mom had). She had nerve blocks but no lasting results. She has tried many meds but only methadone cut her pain to a 4-6 on the pain scale, however it has recently stopped working and she is having to wean off of it. She is desperate to have surgery, and is looking to Dr. Robert in France as well as Houston. If anyone has a phone number or list of requirements for Dr. Robert it would be appreciated as we have applied with a letter but not heard back yet.
My siblings and have been gleaning much information here and wanted to say thank-you for sharing. This site truly does offer hope.
To be able to nurture her grandchildren is mom`s deepest wish; like everyone else here, she just wants her life back.
All the best to you all!
Emily
My name is Emily, daughter of B__, who has been suffering from PN or PNE for 2 years. Mom was a very youthful and active 58 when stricken in 2009. Her pain quickly reached a 9 in any position, lasting all day, robbing her of the ability to focus on simple things like reading or watching a movie. Fortunately the pain is absent while she sleeps. Mom was diagnosed by Dr. Gordon in Toronto (thanks to this site we found his name and figured out what mom had). She had nerve blocks but no lasting results. She has tried many meds but only methadone cut her pain to a 4-6 on the pain scale, however it has recently stopped working and she is having to wean off of it. She is desperate to have surgery, and is looking to Dr. Robert in France as well as Houston. If anyone has a phone number or list of requirements for Dr. Robert it would be appreciated as we have applied with a letter but not heard back yet.
My siblings and have been gleaning much information here and wanted to say thank-you for sharing. This site truly does offer hope.
To be able to nurture her grandchildren is mom`s deepest wish; like everyone else here, she just wants her life back.
All the best to you all!
Emily