Hi my pn friends,
Need some advice, I now have illionuigal neuralgia and have had 2 nerve blocks done within 3 weeks with no help. I have talked to my pain dr regarding the illionuigal nerve n he can freeze the nerve but will need to have it done every 3-6 months depending on how long I get pain relief or have the nerves surgically cut, any help would be appreciated in what u would do.
Thanks
Illionuigal neuralgia
Re: Illionuigal neuralgia
Check out this thread and hopefully it will answer some of your questions.
http://www.pudendalhope.info/forum/view ... f=48&t=951
Good luck!!
http://www.pudendalhope.info/forum/view ... f=48&t=951
Good luck!!
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Illionuigal neuralgia
Ezzl,
Do you have any idea why you have developed this new neuropathy? I'm wondering whether I'm not developing the same thing. Is it nerve "cross talking"?
Do you have any idea why you have developed this new neuropathy? I'm wondering whether I'm not developing the same thing. Is it nerve "cross talking"?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Illionuigal neuralgia
Hi Ezzl,
I had the cryoablation done on my ilioinguinal nerve, twice. First time was May 2007 and then redone in February 2008, I think. At the time, I had gotten some relief from nerve blocks, but they only lasted a couple weeks at most. So the doctor offered the option of cryoablation hoping that would be a longer term solution. I was warned that it may need to be redone, but it also may offer permanent relief.
The procedure was actually fairly easy, and offered significant pain relief. When I had to have it redone, I didn't hesitate. Even if I knew I'd be going back every 3-6 months, I'd choose it again. It's been over 3 years for me since my last treatment, and I'm thrilled with the results. Hopefully the pain won't return now, but if it ever does, I'll be going back for the cryo again.
The only reason I'd hesitate in your case is that the nerve blocks didn't help. I'm not sure if that is an indication on how successful the cryo may or may not be.
Take care,
Anita
I had the cryoablation done on my ilioinguinal nerve, twice. First time was May 2007 and then redone in February 2008, I think. At the time, I had gotten some relief from nerve blocks, but they only lasted a couple weeks at most. So the doctor offered the option of cryoablation hoping that would be a longer term solution. I was warned that it may need to be redone, but it also may offer permanent relief.
The procedure was actually fairly easy, and offered significant pain relief. When I had to have it redone, I didn't hesitate. Even if I knew I'd be going back every 3-6 months, I'd choose it again. It's been over 3 years for me since my last treatment, and I'm thrilled with the results. Hopefully the pain won't return now, but if it ever does, I'll be going back for the cryo again.
The only reason I'd hesitate in your case is that the nerve blocks didn't help. I'm not sure if that is an indication on how successful the cryo may or may not be.
Take care,
Anita
Re: Illionuigal neuralgia
Thanks all v ur help def going ahead now with the cryo. Lernica the illionuingal nerve flared up bout 5 yrs ago n know one knew how to treat it now under my Gyno n my pain dr they put nerve blocks/ ultrasounds in n discovered it was the nerve playing up in addition to the pusendal nerve. What r ur symptoms
Re: Illionuigal neuralgia
Just pain in the upper leg/groin area. No burning.
Good luck with the cryo and please let us know how it goes!
Good luck with the cryo and please let us know how it goes!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com